Southwest

Arizona, California, Colorado, Hawaii, Nevada, New Mexico, Utah

Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region

Upcoming Events

Food for Thought 2016 Events

Cave Creek, AZ – Host: Cheryl Johnson – Date: October 1-14, 2016. Additional details can be found here.

Las Vegas, NV – Host: Lisa Radin – Date: October 2, 2016. Additional details can be found here.

Denver, CO – Host: Ray Martin – Date: October 7, 2016. Additional details can be found here.

Escondido, CA – Host: Carmie Ibarra – Date: October 8, 2016. Additional details can be found here.

California – Host: Terry Walter – Date: October 8, 2016. Additional details can be found here.

Phoenix, AZ – Host: Kathy Ritchie – Date: October 9, 2016. Additional details can be found here.

Awareness and Support Opportunities

AFTD Regional Coordinator

AFTD’s regional coordinator volunteers are the “local” ambassadors for AFTD and the principal coordinator of volunteer activities focusing on awareness, fundraising and all other aspects of the mission in his/her region. They represent AFTD throughout their region and support the volunteers. Questions not related to volunteering should be directed to AFTD’s HelpLine at 866-507-7222 or [email protected] and an AFTD staff member will be happy to assist you.

Southwest Regional Coordinator

Kathy Urban

[email protected]

Kathy Urban

Research and Medical Centers with FTD Focus

Cleveland Clinic, Las Vegas

Lou Ruvo Center for Brain Health
888 West Bonneville
Las Vegas, NV 89106
Director: Jeffrey Cummings, MD

http://my.clevelandclinic.org/brain_health/default.aspx

Contact: 702-483-6000

Mayo Clinic – Scottsdale

13400 East Shea Boulevard
Scottsdale, AZ  85259

www.mayoclinic.org

Contact:480-301-8484

University of California, San Diego

Perlman Neurology Clinic
Shiley-Marcos Alzheimer’s Disease Research Center
UCSD Movement Disorders Program: Dr. Irene Litvan, Director
9350 Campus Pt. Drive
La Jolla, CA  92037

http://adrc.ucsd.edu/OthDemgroup.html

Contacts:
For appointments at the Perlman clinic call: 858-657-8540
For information about FTD related research and how to participate call the Shiley-Marcos Alzheimer’s Disease Research Center: 858-822-4800
For the Movement Disorders Program call Ronarah Roberson at (858) 822-5871, or email [email protected].

University of California, San Francisco

Memory and Aging Center
350 Parnassus Ave.  Suite 706
San Francisco, CA  94117

www.memory.ucsf.edu/ftd/

Contact: (415) 476-6880

University of California, Los Angeles

FTD Clinic
10911 Weyburn Ave., Suite 200
Los Angeles, CA  90095

          http://www.neurology.ucla.edu/index.jsp?m=2&s=4_3

Contact: 310-794-2550

University of Utah Center for Alzheimer’s Care, Imaging and Research (CACIR)

Cognitive Disorders Clinic
Imaging & Neurosciences Center
729 Arapeen Dr.
Salt Lake City, UT  84108

www.utahmemory.org

Contacts:
Danielle Justesen, Clinic Coordinator: 801-585-7575 or [email protected]
For more information about research at CACIR call the Memory Study Line: 801- 587-7888

Support Groups in this Region

AFTD-logo-outlinesDenotes group is led by an AFTD affiliated leader who has participated in additional FTD training.
Note: Before attending your first group, please contact your facilitator for more details.

ARIZONA
AZ – Phoenix 2nd Tuesday of the month from 12:30 p.m.–2 p.m. Geri Hall, Ph.D., ARNP, FAAN
Banner
602-839-6900
Maribeth Gallagher, DNP
Hospice of the Valley
602-636-2220
Banner Alzheimer’s Institute
901 E Willetta Street
Phoenix, Arizona 85006
(Meets in Third Floor Library)
AZ – Sun City 4th Tuesday of the month from 12:30 p.m. – 2:00 p.m. Geri Hall PhD, ARNP, FAAN
602-839-6900Facility contact info:
[email protected]
www.bannershri.org
Banner Sun Health Research Institute
Building C, First Floor Conference Room
10515 W. Sante Fe Dr.
Sun City, AZ 85351
CALIFORNIA
CA – San Diego 1st Wednesday of the month from 2 p.m.–3:30 p.m. Tracey Truscott
858-822-4800
[email protected]
In the conference room at the Shiley-Marcos Alzheimer’s Disease Research Center, University of California, San Diego (not on campus).
CA – Sacramento 4th Wednesday of the month from 7 p.m.–8:30 p.m. Kristen Krueger
[email protected]
Sacramento Area Alzheimer’s Association
1-800-272-3900
Shriner’s Hospital on the UC Davis Medical Center Campus
7th Fl. Board Rm.
2425 Stockton Blvd
Sacramento, CA 95817
CA – Los Angeles/Orange County area Morning group: 1st Wednesday of the month from 9:30 a.m.–11:30 a.m.
Afternoon group: 3rd Tuesday of the month from 1 p.m.–2:30 p.m.
Larissa Haiker, MSW
949-757-3758
[email protected]Donna Velarde, LCSW
949-757-3759
[email protected]
Alzheimer’s Orange County
Suite 200
2515 McCabe Way
Irvine, CA

CA – San Luis Obispo

AFTD-logo-outlines

4th Saturday of each month at 1:00 p.m. Liz Johnston
[email protected]
or (805) 471-8102
11549 Los Osos Valley Rd., Suite 109, San Luis Obispo, CA. (Parking is in the back of the building off of El Tigre St.)
CA – San Francisco 2nd Thursday of the month from 12:30 p.m.–2:00 p.m. Robin Ketelle
415-514-2058
University of California, San Francisco
Neurosciences Building 19A
675 Nelson Rising Lane
San Francisco, CA 94158
CA – San Francisco
*(those caring for loved ones with CBD/PSP)AFTD-logo-outlines
BSN logo bug-on-left teal-wrapped-text 1842x879
 Sundays, about every six weeks, from 5 p.m.–7 p.m. (call for schedule) Robin Riddle
650-814-0848 [email protected]
Mimi’s Cafe
2208 Bridgepointe Parkway
San Mateo, CA 94404
COLORADO
CO – Colorado Springs 3rd Wednesday of the month at 7 p.m. Alzheimer’s Association
719-266-8773
First United Methodist Church
Rm 231
420 North Nevada
Colorado Springs, CO
CO – Denver 2nd Tuesday of the month at 5:30 p.m. Heather Kanapackis
303-813-1669 
Porter Adventist Hospital
Cottonwood Springs Training Room
2525 S. Downing Street
Denver, CO
CO – Fort Collins
AFTD-logo-outlines
3rd Tuesday of the month at 2:30 p.m. Missey Toomey
970 484-2542
970 689-6193
[email protected]
Andrea Maga
970  226-1544
[email protected]
Daz Bog Coffee
401 Mason Ct
Fort Collins, 80524
NEVADA
NV – Las Vegas 1st and 3rd Wednesdays of each month. Lisa Radin
702-489-2344
[email protected]
Lou Ruvo Center for Brain Health
888 West Bonneville Avenue
Las Vegas, NV 89106
NV – Reno 3rd Friday of each month from 2 p.m.–3 p.m. Lisa Tauchen
[email protected]
Jacob Harmon
[email protected]
1-800-272-3900
Renown Regional Medical Center
Suite 401
Neurology Department Conference Room
75 Pringle Way
Reno, NV  89502
UTAH
UT – Salt Lake City area
AFTD-logo-outlines
2nd Wednesday of the month from 10 a.m.–11:30 a.m. Bonnie Shepherd
801- 231-3442
[email protected]
Sandy Senior Center
9310 South, 1300 East
Sandy, UT
UT – Salt Lake City area 2nd Wednesday of the month from 6 p.m.–7:30 p.m. Jamie Gordon
801-550-3563
[email protected]
Bingham Creek Library
4834 West 9000 South
West Jordan, UT 84081
PHONE GROUP
*(Phone-based for adult children affected by FTD) 3rd  Thursday of the month from 5 p.m.–6:30 p.m. Led and organized by University of California, San Francisco:
Jamie C. Fong, M.S., CGC
415-476-8613
[email protected]
National phone-based support group.  Contact facilitator for access number.