South Atlantic

Alabama, Florida, Georgia, Kentucky, Mississippi, North Carolina, South Carolina, Tennessee

Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region

Upcoming Events

Food for Thought 2016 Events:

Nashville, TN – Host: Lucy Carter – Date: October 3, 2016. Further details are here.

Alpharetta, GA – Host: Sharon Hall – Date: October 5, 2016. Further details are here.

Elizabeth City, NC – Host: Laura Alvarico – Date: October 6, 2016. Further details are here.

Tampa, FL – Host: Mary Anne Upham – Date: October 9, 2016. Further details are here.

Baumgartner Golf Tournament
Tuesday, October 11, 2016 at 9:00 a.m. (shotgun start)
Ballantrae Golf Club
1300 Ballantrae Club Drive
Pelham, AL
The friends and family of John Baumgartner, who is living with FTD, host an annual golf tournament to raise FTD awareness in Alabama and funds to benefit AFTD’s mission. This year, FTD supporters local to Birmingham and the surrounding areas are invited to volunteer their talents to support the tournament, to be held at Ballantrae Golf Club in Pelham, AL on October 11, 2016. Volunteers are welcomed in any capacity – administrative support, solicitations, day-of help, etc. For more information or to volunteer in any capacity, please email Debbie at [email protected].

Awareness and Support Opportunities

Heavenly Little Gifts on Etsy– Darla Dietz and family have created a line of scented wax melts to raise awareness for FTD. Each purchase comes packaged with an FTD information sheet and 25% of the purchase price is donated to AFTD.

Perfect “Jules” – Amber Dietz and Joy Clinger, sister and mother of Julie Dickmeyer Zerhusen who passed away from FTD at age 31 in 2009, have teamed up to make personalized accessories in memory of Julie.  They hand craft hair bows, onesies, bibs, baby blankets and burp cloths for little ones, as well as personalized aprons, tote bags and bridal accessories for adults.  A portion of their proceeds benefits AFTD.

Mom’s Laugh Project – Tori Tinsley’s mother was diagnosed with FTD in 2009. To honor her mother, Tori created the “Mom’s Laugh Project” where Tori creates full size paintings from pictures of her mother’s past, sells them, and donates part of the proceeds to AFTD. To date she has sold more than twenty of these preservation pieces.

AFTD Regional Coordinator

AFTD’s regional coordinator volunteers are the “local” ambassadors for AFTD and the principal coordinator of volunteer activities focusing on awareness, fundraising and all other aspects of the mission in his/her region. They represent AFTD throughout their region and support the volunteers. Questions not related to volunteering should be directed to AFTD’s HelpLine at 866-507-7222 or [email protected] and an AFTD staff member will be happy to assist you.

South Atlantic Regional Coordinator
Michelle Grant:
While Michelle is on a temporary leave of absence, please contact Kerri Barthel Keane at: [email protected]
Grant_Michelle

Research and Medical Centers with FTD Focus

Emory University, Atlanta, GA
Department of Neurology – Cognitive Neurology Clinic
Emory Alzheimer’s Disease Research Center
12 Executive Park
Atlanta, GA 30329

http://med.emory.edu/ADRC/dementias/frontotemporal_dementia/index.html

Contacts:
Cognitive Neurology Evaluations – 404-778-3444 to schedule appointments
Alzheimer’s Disease Research Center – 404-728-6950 for more details about FTD related research at Emory and how to participate.

Mayo Clinic, Jacksonville
Department of Neurology
4500 San Pablo Road
Jacksonville, FL 32224

www.mayoclinic.org

Contact: 904-953-0853

University of Alabama at Birmingham

The Kirklin Clinic of UAB Hospital
2000 6th Avenue South
Birmingham, AL  35233

Contact: For general information: 205-996-3679 (205-99MEMRY)

For patient appointments: 205-801-8986

For information on participating in research (ARTFL): Denise Ledlow, RN, 205-934-6223, [email protected]<

https://www.facebook.com/uab.memorydisordersclinic

http://www.uabmedicine.org/patient-care/conditions/dementia

University of Kentucky Memory Disorders Clinic
UK Medical Center
224 Charles T. Wethington Bldg.
800 South Limestone St.
Lexington, KY  40536-0284

http://www.uky.edu/coa/

Contact: Candace Bear 859-218-5047 or [email protected]

University of Louisville
Division of Movement Disorders, University of Louisville School of Medicine,
Frazier Rehab Neuroscience Building
220 Abraham Flexner Way, Suite 1503
Louisville, KY 40202

Contact: Casey Shepherd, coordinator, at 502-852-3655 or [email protected]

University of North Carolina
Memory & Cognitive Disorders Clinic
101 Manning Drive
Chapel Hill, NC 27514
Phone: 919-966-8168

http://www.med.unc.edu/neurology/divisions/memory-and-cognitive-disorders

Support Groups in this Region

AFTD-logo-outlinesDenotes group is led by an AFTD affiliated leader who has participated in additional FTD training.
Note: Before attending your first group, please contact your facilitator for more details.

FLORIDA
FL – Gainesville 2nd Wednesday of the month, 7 p.m. Charlie Sperrazza
352-339-0571Nancy Lewis
352-377-7708
[email protected]
Altrusa House of Gainesville
2002 N.W. 36th Ave.
Gainesville, FL 32605
FL – Tampa
AFTD-logo-outlines
2nd Sunday of each month, 10 a.m. Mary Anne Upham
[email protected]
Arden Court Alzheimer’s
Assisted Living
14950 Casey Rd.
Tampa, Florida, 33624
FL – West Palm BeachAFTD-logo-outlines 2nd and 4th Fridays, 1:30 p.m.–3:00 p.m. Sandra Lutz
561-202-1779
[email protected]
Alzheimer’s Community Care
800 Northpoint Parkway
Suite 101-B
West Palm Beach, FL 33407
GEORGIA
GA – Atlanta 2nd Tuesday of each month , 6:30 p.m.–8:00 p.m. Tori Tinsley, LPC, ATR
404-808-5676
[email protected]
David Triemer, Ph.D.
404-405-8083
[email protected]
AV Room of Emory’s Wesley Woods Geriatric Hospital
1821 Clifton Rd.
Atlanta, GA  30329

GA – Cumming

AFTD-logo-outlines

1st Wednesday of the month from 7:00 p.m. -8:30 p.m. Sharon Hall: (678) 455-7920 or [email protected] Northside Forsyth Hospital
1400 Bldg. Bennett Classrm B
1200 Northside Forsyth Dr, Cumming, GA 30041
NORTH CAROLINA
NC – Burlington 3rd Tuesday of the month, 7 p.m. Courtney Greene
336-260-4798
[email protected]
Contact facilitator
NC – Raleigh/CaryAFTD-logo-outlines 3rd Tuesday of the month, 7 p.m. Paul Lester
919-538-4827
[email protected]
http://sarahcare.com/lakeboonetrail/contact-us/
SarahCare Adult Day Center
Suite 101
2245 Gateway Access Point
Raleigh, NC 27607
NC – Concord 4th Tuesday of the month, 6:30 p.m. Robert Carpenter
(704) 773-2891
[email protected]
Contact facilitator
NC – Matthews 2nd Sunday of the month, 3 p.m.–5 p.m. Charles Elligson
(704) 535-8234
[email protected]
Contact facilitator for specifics.
NC – Winston-SalemAFTD-logo-outlines 2nd Monday of the month, 7 p.m.–9 p.m. Rona Klein
336-399-6968
[email protected]
Temple Emanuel
201 Oakwood Drive
Winston-Salem, NC  27103
SOUTH CAROLINA

SC – Columbia area

AFTD-logo-outlines

3rd Tuesday of the month, at 6:00 p.m. Mary Revels
[email protected]
803-603-2056
Greenlawn Baptist Church,
6612 Garners Ferry Rd.
Columbia, SC 29209
TENNESSEE
TN – Knoxville 2nd Monday of the month, 5:30 p.m.–6:30 p.m. Linda Johnson
865-544-6288
[email protected]
Sallie Gentry
[email protected]
Cole Neuroscience Center:
865-305-6740
University of Tennessee Medical Center
1924 Alcoa Hwy, Knoxville, TN 37920
(Heart Health Elevators)
TN – Nashville 1st and 3rd Thursday of the month, 7 p.m. Adriana Kipper-Smith, PhD
[email protected]
Vanderbilt Psychological & Counseling Center
2015 Terrace Place
Nashville, TN 37203
PHONE GROUP
*(Phone based for adult children affected by FTD) 3rd Thursday of the month from 5 p.m.–6:30 p.m. Led and organized by University of California, San Francisco:
Jamie C. Fong, M.S., CGC, 415-476-8613
[email protected]
National phone-based support group. Contact facilitator for access number.