Alabama, Florida, Georgia, Kentucky, Mississippi, North Carolina, South Carolina, Tennessee
There are no upcoming events at this time, but please check back periodically as events are regularly.
Awareness and Support Opportunities
Moonlily Designs Jewelry on Etsy– Darla Dietz creates one-of-a-kind artist-designed, hand beaded jewelry to raise FTD awareness. Each purchase comes packaged with an FTD information sheet and 10% of the sale, with a minimum of $1.00 (whichever is greater), will be donated to AFTD.
Perfect “Jules” – Amber Dietz and Joy Clinger, sister and mother of Julie Dickmeyer Zerhusen who passed away from FTD at age 31 in 2009, have teamed up to make personalized accessories in memory of Julie. They hand craft hair bows, onesies, bibs, baby blankets and burp cloths for little ones, as well as personalized aprons, tote bags and bridal accessories for adults. A portion of their proceeds benefits AFTD.
Mom’s Laugh Project – Tori Tinsley’s mother was diagnosed with FTD in 2009. To honor her mother, Tori created the “Mom’s Laugh Project” where Tori creates full size paintings from pictures of her mother’s past, sells them, and donates part of the proceeds to AFTD. To date she has sold more than twenty of these preservation pieces.
AFTD Regional Coordinator
AFTD’s regional coordinator volunteers are the “local” ambassadors for AFTD and the principal coordinator of volunteer activities focusing on awareness, fundraising and all other aspects of the mission in his/her region. They represent AFTD throughout their region and support the volunteers. Questions not related to volunteering should be directed to AFTD’s HelpLine at 866-507-7222 or [email protected] and an AFTD staff member will be happy to assist you.
South Atlantic Regional Coordinator
While Michelle is on a temporary leave of absence, please contact Kerri Barthel Keane at: [email protected]
Research and Medical Centers with FTD Focus
Emory University, Atlanta, GA
Department of Neurology – Cognitive Neurology Clinic
Emory Alzheimer’s Disease Research Center
12 Executive Park
Atlanta, GA 30329
Cognitive Neurology Evaluations – 404-778-3444 to schedule appointments
Alzheimer’s Disease Research Center – 404-728-6950 for more details about FTD related research at Emory and how to participate.
Mayo Clinic, Jacksonville
Department of Neurology
4500 San Pablo Road
Jacksonville, FL 32224
University of Alabama at Birmingham
The Kirklin Clinic of UAB Hospital
2000 6th Avenue South
Birmingham, AL 35233
Contact: For general information: 205-996-3679 (205-99MEMRY)
For patient appointments: 205-801-8986
For information on participating in research (ARTFL): Denise Ledlow, RN, 205-934-6223, [email protected]<
University of Kentucky Memory Disorders Clinic
UK Medical Center
224 Charles T. Wethington Bldg.
800 South Limestone St.
Lexington, KY 40536-0284
Contact: Candace Bear 859-218-5047 or [email protected]
University of Louisville
Division of Movement Disorders, University of Louisville School of Medicine,
Frazier Rehab Neuroscience Building
220 Abraham Flexner Way, Suite 1503
Louisville, KY 40202
Contact: Casey Shepherd, coordinator, at 502-852-3655 or [email protected]
University of North Carolina
Memory & Cognitive Disorders Clinic
101 Manning Drive
Chapel Hill, NC 27514
Support Groups in this Region
Denotes group is led by an AFTD affiliated leader who has participated in additional FTD training.
Note: Before attending your first group, please contact your facilitator for more details.
|FL – Gainesville||2nd Wednesday of the month, 7 p.m.||Charlie Sperrazza
|Altrusa House of Gainesville
2002 N.W. 36th Ave.
Gainesville, FL 32605
FL – Sarasota
|4th Tuesday of the Month, 10:30 a.m.||Robin Albright: 309-261-0934
|2040 Whitfield Ave.
Sarasota, FL 34243
|FL – Tampa
||2nd Sunday of each month, 10 a.m.||Mary Anne Upham
|Arden Court Alzheimer’s
14950 Casey Rd.
Tampa, Florida, 33624
|FL – West Palm Beach||2nd and 4th Fridays, 1:30 p.m.–3:00 p.m.||Sandra Lutz
|Alzheimer’s Community Care
800 Northpoint Parkway
West Palm Beach, FL 33407
|GA – Atlanta||2nd Tuesday of each month , 6:30 p.m.–8:00 p.m.||Tori Tinsley, LPC, ATR
David Triemer, Ph.D.
|AV Room of Emory’s Wesley Woods Geriatric Hospital
1821 Clifton Rd.
Atlanta, GA 30329
GA – Cumming
|1st Wednesday of the month from 7:00 p.m. -8:30 p.m.||Sharon Hall: (678) 455-7920 or [email protected]||Northside Forsyth Hospital
1400 Bldg. Bennett Classrm B
1200 Northside Forsyth Dr, Cumming, GA 30041
|NC – Burlington||3rd Tuesday of the month, 7 p.m.||Courtney Greene
|NC – Raleigh/Cary||3rd Tuesday of the month, 7 p.m.||Paul Lester
|SarahCare Adult Day Center
2245 Gateway Access Point
Raleigh, NC 27607
|NC – Matthews||2nd Sunday of the month, 3 p.m.–5 p.m.||Charles Elligson
|Contact facilitator for specifics.|
|NC – Winston-Salem||2nd Monday of the month, 7 p.m.–9 p.m.||Rona Klein
201 Oakwood Drive
Winston-Salem, NC 27103
SC – Columbia area
|3rd Tuesday of the month, at 6:00 p.m.||Mary Revels
|Greenlawn Baptist Church,
6612 Garners Ferry Rd.
Columbia, SC 29209
|TN – Knoxville||2nd Monday of the month, 5:30 p.m.–6:30 p.m.||Linda Johnson
Cole Neuroscience Center:
|University of Tennessee Medical Center
1924 Alcoa Hwy, Knoxville, TN 37920
(Heart Health Elevators)
|TN – Nashville||1st and 3rd Thursday of the month, 7 p.m.||Adriana Kipper-Smith, PhD
|Vanderbilt Psychological & Counseling Center
2015 Terrace Place
Nashville, TN 37203
|*(Phone based for adult children affected by FTD)||3rd Thursday of the month from 5 p.m.–6:30 p.m.||Led and organized by University of California, San Francisco:
Jamie C. Fong, M.S., CGC, 415-476-8613
|National phone-based support group. Contact facilitator for access number.|