Illinois, Indiana, Iowa, Michigan, Minnesota, Nebraska, North Dakota, Ohio, South Dakota, Wisconsin

Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region

Upcoming Events

There are no upcoming events at this time, but please check back periodically as events are added regularly.

  Awareness and Support Opportunities

My Dad- Dealing with FTD – Caregiver Jen Steffen has published a book featuring past and current photos of her father, who has FTD, along with reflections from family members and friends and facts about FTD. The book is $24 including shipping. The book is listed on Amazon here.

AFTD Regional Coordinator

AFTD’s regional coordinator volunteers are the “local” ambassadors for AFTD and the principal coordinator of volunteer activities focusing on awareness, fundraising and all other aspects of the mission in his/her region. They represent AFTD throughout their region and support the volunteers. Questions not related to volunteering should be directed to AFTD’s HelpLine at 866-507-7222 or info@theaftd.org and an AFTD staff member will be happy to assist you.

Midwest Regional Coordinator

A search for a Regional Coordinator Volunteer is underway. Contact Kerri Barthel, Volunteer Manager, if you would like to learn more about the volunteer opportunities in your community at kbarthel@theaftd.org or ph: 267-758-8652.

Research and Medical Centers with particular FTD Focus

Indiana Alzheimer Disease Center

Indiana University School of Medicine
355 West 16th Street
Goodman Hall, Suite 4100
Indianapolis, IN 46202


Contact: 317-963-5500
To schedule an appointment: select 4 for Clinical Core; for information about Brain Donation: select 7 for Neuropathology Studies.
Dr. Andrew J. Saykin, PsyD is the Director of the IADC.

Mayo Clinic, Rochester

4111 Highway 52 North
Rochester, MN 55901


Contact:  507-538-3270

Northwestern University

Cognitive Neurology & Alzheimer’s Disease Center
320 E. Superior Street, #11-453B
Chicago, IL  60611


Contact:  Darby Morhardt at 312-908-9432  or

University Hospitals Neurological Institute

Brain Health and Center
Parkway Medical Building
3619 Park East Dr., Suite 211
Beachwood, OH  44122


For appointments: Kathy Perkins, Secretary – 216-464-6445 or kathy.perkins@uhhospitals.org
For research and other services: Marianne Sanders, RN – 216-464-6462

Support Groups in this Region

AFTD-logo-outlinesDenotes group is led by an AFTD affiliated leader who has participated in additional FTD training.
Note: Before attending your first group, please contact your facilitator for more details.

IL – Champaign 2nd Saturday of each month, 11:30 a.m. Janelle Drake
309 830-0946
drakejanelle @yahoo.com
Olive Garden
30 E. Anthony Drive
Champaign, IL
IL – Chicago 3rd Monday of the month, 6 p.m.–7:30 p.m. Darby Morhardt, PhD, LCSW
Details: http://brain.northwestern.edu
Northwestern Memorial Hospital
251 E Huron St, Chicago, IL 60611

IL – Chicago area:  Downers Grove


1st Tuesday of the month, 7 p.m.–8:30 p.m. Lorene Schlie
Gloria Dei Lutheran Church
4501 Main Street
Downers Grove, Illinois  60516

IL – Tremont


Fourth Saturday of the month, from 10:00 – 11:30 a.m. Katrina Hellman katrina.hellman@att.net
or (630) 650-7951
Tremont United Methodist Church
Church Parlor
101 S Sampson St Tremont IL, 61568
IN – Indianapolis 1st Tuesday of the month, 6:30 p.m.–8:30 p.m. Mary Austrom, Ph.D.
Donna Wert
317- 963-5500 (select 5 for Education)
Joy’s House Adult Day Services
2028 E. Broad Ripple Avenue
Indianapolis, IN
IA – Mason City (and Southern MN)
2nd Tuesday of the month, 6:30 p.m. Deb Nash
520 South Pierce
Suite 100
Mason City, Iowa
MI – Detroit areaAFTD-logo-outlines 4th Thursday of the month, 5 p.m.–6 p.m. Greater MI Chapter’s Harry L. Nelson Helpline at 248-351-0280
Susan McEwan
Beaumont Health Center
Area B, 4949 Coolidge Hwy
Royal Oak, Michigan 48073
MI – Grand Rapids 1st Wednesday of the month, 6:30 p.m.–8 p.m. Karen S. Bugg, RN, LMSW
Saint Mary’s Health Care
Lacks Center Grand Conference Room, lower level
250 Cherry Street
Grand Rapids, MI 49503
MN – Twin Cities area 2nd Tuesday of the month at 6 p.m. Lynn Erkkila, MSW, LICSW
(for other dementia support groups available, contact Ellen:  651-232-2166)
Bethesda Hospital
B- Level Conference Room
559 Capitol Blvd.
St. Paul, MN  55103
MN – Twin Cities 1st Monday of each month, 6 p.m. Moira Rummel
Richfield United Methodist Church
5835 Lyndale Avenue South
Minneapolis, MN  55419
MN – Twin Cities: SW Suburbs
1st Meeting: May 10, 2016, 6:00 p.m. Sarah Lunneborg-Vance
Kathy Sullivan
The Colony
431 Prairie Center Drive
Eden Prairie, MN 55344
OH – Akron/Canton area 2nd Wednesday of the month, 6 p.m.–7 p.m. Erin Ferris
Karen Elliott
(330) 650-0552
Neurology and Neuroscience
701 White Pond Dr.
Akron, OH  44320
OH – Cleveland area 2nd Saturday of the month, 1:30 p.m.–3:30 p.m. Lauren Brasse, LISW, MSSA
216-342-5584 or 800-272-3900
Marianne Sanders, RN
Alzheimer’s Association
23215 Commerce Park Drive, 300
Beachwood, OH 44122
OH – Newark
1st Thursday of the month –  2-4:00 p.m.  AND  6-8:00p.m. Vickie Bope:
Main Newark Library
101 W. Main St.
Newark, OH 43055
*(Phone based for adult children affected by FTD) 3rd Thursday of the month from 5 p.m.–6:30 p.m. Led and organized by University of California, San Francisco:
Jamie C. Fong, M.S., CGC, 415-476-8613
National phone-based support group. Contact facilitator for access number.