Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region

Upcoming Events

Help Josh Fine a Cure for FTD- On Friday, July 25th, at Ruffled Feathers Golf Club in Lemont, IL, friends and family of Josh Pierce will host the 2nd Annual Josh for the Cure Golf Outing. For more information and to register, visit the event website.

9th Annual George F. Sidoris Memorial Golf Outing – The Sidoris family will hold their 9th annual golf outing on July 26 at the Lost Nation Golf Course in Willoughby, Ohio. For more information and to register, visit the event website.

Jesiii on Etsy – Jesi Rodgers, whose mother is affected with FTD, has designed a high quality art print on wooden paper.  She will donate 50% of the proceeds from the sales to AFTD.  Her piece is entitled “Remember to Love” and features a playful elephant, hearts and flowers.

To Tame a Wildflower - Laura Lytle has created FTD t-shirts that she sells on her website.  A portion of each FTD t-shirt sold will be donated to AFTD.  Simply scroll through to the page with the “Pray for the Cure 2″ FTD shirt to order.

AFTD Regional Network Coordinators

Lorene Schlie: loreneschlie@comcast.net. Lorene oversees: Indiana, Illinois, Michigan, Ohio, and Wisconsin

Charlene Martin-Lillie: cmartinlillie306@gmail.com. Charlene oversees: North Dakota, South Dakota, Nebraska, Minnesota, and Iowa

Research and Medical Centers with particular FTD Focus

Indiana Alzheimer Disease Center

Indiana University School of Medicine
635 Barnhill Drive
Medical Science Room A-142
Indianapolis, IN  46202-5120


Contact: 317-274-1590

Mayo Clinic, Rochester

4111 Highway 52 North
Rochester, MN 55901


Contact:  507-538-3270

Northwestern University

Cognitive Neurology & Alzheimer’s Disease Center
320 E. Superior Street, #11-453B
Chicago, IL  60611


Contact:  Darby Morhardt at 312-908-9432  or d-morhardt@northwestern.edu

University Hospitals Neurological Institute

Brain Health and Center
Parkway Medical Building
3619 Park East Dr., Suite 211
Beachwood, OH  44122


For appointments: Kathy Perkins, Secretary – 216-464-6445 or kathy.perkins@uhhospitals.org
For research and other services: Marianne Sanders, RN – 216-464-6462

Support Groups in this Region


Support group for FTD caregivers

Meeting Time:
Second Saturday of each month at 11:30 a.m.

Olive Garden
30 E. Anthony Drive
Champaign, IL

Kathy Vance at 217-493-4228 or  kv650@mchsi.com or Valli Haines at 217-260-4233 or valli.haines@sbcglobal.net.
Please call before attending a meeting for the first time.

Illinois – Chicago

For people diagnosed with PPA. Under the auspices of the Northwestern University Cognitive Neurology and Alzheimer’s Disease Center.

Early-Stage PPA Education and Support Group (for people who have been diagnosed with PPA)

Meeting time:
Alternate Thursdays, 1 to 2 :30 p.m.

Cognitive Neurology and Alzheimer’s Disease Center
Northwestern University Feinberg School of Medicine

Mary O’Hara, LCSW, at 312-503-0604 or m-ohara@northwestern.edu

For caregivers of people diagnosed with FTD and PPA. Under the auspices of the Northwestern University Cognitive Neurology and Alzheimer’s Disease Center

Meeting time:
Third Monday of the month, 6 – 7:30 p.m.

Northwestern Memorial Hospital, Downtown Chicago

Darby Morhardt, MSW, LCSW at 312-908-9432
Details posted on http://brain.northwestern.edu

Illinois – Chicago area, Downers Grove

Support Group for FTD caregivers and those with other dementias

Meeting time:
First Tuesday of the month, 7 – 8:30 p.m.

Gloria Dei Lutheran Church
4501 Main Street
Downers Grove, Illinois  60516

Lorene Schlie at loreneschlie@comcast.net

Illinois- Peoria

Support group for FTD caregivers

Meeting Time:
4th Saturday of the from 10:30 a.m. – 12:00 p.m.

Zinger Zanger Studio
929 N. Sheridan, Studio 1A
Peoria, IL  61601

Robin Allbright at 309-261-0934 or robin@zingerzanger.com
Amber Carrier at 309-275-2541 or carriermom@gmail.com

Indiana – Indianapolis

Support group sponsored by the Indiana Alzheimer Disease Center

Meeting time:
2nd Tuesday of each month, 6:30-8:30 p.m.

Indianapolis First Friends Church
3030 Kessler Blvd East Drive
Indianapolis, IN  46220

Mary Austrom, Ph.D. at mguerrie@iupui.edu or 317-331-8306 or 317-501-1774

Michigan – Grand Rapids

Co-sponsored by the Alzheimer’s Association, Greater MI Chapter

Meeting time:
First Wednesday of the month, 6:30-8:00 p.m.

Saint Mary’s Health Care
Lacks Center Grand Conference Room, Lower Level
250 Cherry Street
Grand Rapids, MI 49503

Karen S. Bugg, RN, LMSW, at 616-685-5445

Minnesota – Minneapolis/St Paul area

Co-sponsored by the Alzheimer’s Association – Minnesota-North Dakota Chapter and Bethesda Hospital, Alzheimer’s, Memory Loss & Dementia Clinic

For FTD caregivers

Meeting time:
2nd & 4th Monday of the month from 6:00 – 8:00 p.m..

Bethesda Hospital- B- Level Conference Room
559 Capitol Blvd.
St. Paul, MN  55103

Tanya Rand, MSW, LICSW – 651-232-2202 (for more information about support groups)

Also offer a support group for people caring for a loved-one with any type of dementia which meets twice on the 4th Tuesday of the month from 10 a.m. to 12 p.m. or 5:30 to 7:30 p.m. Recreational programming for people with FTD is available at no cost, while caregivers attend this support group meetings.

For more information about recreational activities, contact at Michele Neuman – 651-232-2258

Minnesota – Twin Cities area

Under the auspices of the Alzheimer’s Association – Minnesota-North Dakota Chapter

Meeting time:
First Monday of each month at 6:00 p.m.

Richfield United Methodist Church
5835 Lyndale Avenue South
Minneapolis, MN  55419

Moira Rummel at 612-920-5502

Ohio – Akron/Canton area

Under the auspices of the Alzheimer’s Association, Greater East OH area chapter

Meeting time:
2nd Wednesday of the month, 6:00-7:00 p.m.

Neurology and Neuroscience
701 White Pond Dr.
Akron, OH  44320

Erin Ferris at erin.ferris@alz.org or Karen Elliott at karen.elliott@alz.org or by phone at (330) 650-0552.

Ohio – Cleveland area

Collaboration of the Alzheimer’s Association Cleveland Area Chapter and
University Hospitals Memory and Cognition Center

Meeting time:
Second Saturday of the month, 1:30pm – 3:30p.m.

Alzheimer’s Association
23215 Commerce Park Drive, 300
Beachwood, OH 44122

Lauren Brasse, LISW, MSSA, Alzheimer’s Association
at 216-342-5584 or 800-272-3900
Marianne Sanders, RN, Memory and Cognition Center at 216-464-6462

Ohio – Columbus area

Under the auspices of the Alzheimer’s Association, Northwest OH chapter

Meeting time:
Third Saturday of the month, 9:30 – 11:30 a.m.

Alzheimer’s Association
1379 Dublin  Rd.
Columbus, Ohio  43215

Anne Bare, RNBS at 614-457-6003 or 800-272-3900

Ohio - Northwest Ohio area

Under the auspices of the Alzheimer’s Association, Central Ohio Chapter

Meeting time:
2nd Monday of the month, 6:30 – 8:00 p.m.

St. Andrew United Methodist Church (parlor room)
120 West Sandusky Street
Findlay, OH
(Park on Crawford Street; enter church through door on Cory Street)

Linda Rae Pollitz, LSW at 419-227-9700