Illinois, Indiana, Iowa, Michigan, Minnesota, Nebraska, North Dakota, Ohio, South Dakota, Wisconsin
There are no upcoming events at this time, but please check back periodically as things are added continuously.
Awareness and Support Opportunities
My Dad- Dealing with FTD – Caregiver Jen Steffen has published a book featuring past and current photos of her father, who has FTD, along with reflections from family members and friends and facts about FTD. The book is $24 including shipping. The book is listed on Amazon here.
AFTD’s regional coordinator volunteers are the “local” ambassadors for AFTD and the principal coordinator of volunteer activities focusing on awareness, fundraising and all other aspects of the mission in his/her region. They represent AFTD throughout their region and support the volunteers. Questions not related to volunteering should be directed to AFTD’s HelpLine at 866-507-7222 or [email protected] and an AFTD staff member will be happy to assist you.
Midwest Regional Coordinator
A search for a Regional Coordinator Volunteer is underway. Contact Kerri Barthel, Volunteer Manager, if you would like to learn more about the volunteer opportunities in your community at [email protected] or ph: 267-758-8652.
Indiana Alzheimer Disease Center
Indiana University School of Medicine
355 West 16th Street
Goodman Hall, Suite 4100
Indianapolis, IN 46202
To schedule an appointment: select 4 for Clinical Core; for information about Brain Donation: select 7 for Neuropathology Studies.
Dr. Andrew J. Saykin, PsyD is the Director of the IADC.
Mayo Clinic, Rochester
4111 Highway 52 North
Rochester, MN 55901
Cognitive Neurology & Alzheimer’s Disease Center
320 E. Superior Street, #11-453B
Chicago, IL 60611
Contact: Darby Morhardt at 312-908-9432 or
University Hospitals Neurological Institute
Brain Health and Center
Parkway Medical Building
3619 Park East Dr., Suite 211
Beachwood, OH 44122
For appointments: Kathy Perkins, Secretary – 216-464-6445 or [email protected]
For research and other services: Marianne Sanders, RN – 216-464-6462
Denotes group is led by an AFTD affiliated leader who has participated in additional FTD training.
Note: Before attending your first group, please contact your facilitator for more details.
|IL – Champaign||2nd Saturday of each month, 11:30 a.m.||Janelle Drake
30 E. Anthony Drive
|IL – Chicago||3rd Monday of the month, 6 p.m.–7:30 p.m.||Darby Morhardt, PhD, LCSW
|Northwestern Memorial Hospital
251 E Huron St, Chicago, IL 60611
IL – Chicago area: Downers Grove
|1st Tuesday of the month, 7 p.m.–8:30 p.m.||Lorene Schlie
|Gloria Dei Lutheran Church
4501 Main Street
Downers Grove, Illinois 60516
IL – Tremont
|Fourth Saturday of the month, from 10:00 – 11:30 a.m.||Katrina Hellman [email protected]
or (630) 650-7951
|Tremont United Methodist Church
101 S Sampson St Tremont IL, 61568
|IN – Indianapolis||2nd Tuesday of the month, 6:30 p.m.–8:30 p.m.||Mary Austrom, Ph.D.
317- 963-5500 (select 5 for Education)
|Joy’s House Adult Day Services
2028 E. Broad Ripple Avenue
|IA – Mason City (and Southern MN)
||2nd Tuesday of the month, 6:30 p.m.||Deb Nash
|520 South Pierce
Mason City, Iowa
|MI – Detroit area||4th Thursday of the month, 5 p.m.–6 p.m.||Greater MI Chapter’s Harry L. Nelson Helpline at 248-351-0280
|Beaumont Health Center
Area B, 4949 Coolidge Hwy
Royal Oak, Michigan 48073
|MI – Grand Rapids||1st Wednesday of the month, 6:30 p.m.–8 p.m.||Karen S. Bugg, RN, LMSW
|Saint Mary’s Health Care
Lacks Center Grand Conference Room, lower level
250 Cherry Street
Grand Rapids, MI 49503
|MN – Twin Cities area||2nd and 4th Mondays of the month, 6 p.m.–8 p.m.||Lynn Erkkila, MSW, LICSW
(for other dementia support groups available, contact Ellen: 651-232-2166)
B- Level Conference Room
559 Capitol Blvd.
St. Paul, MN 55103
|MN – Twin Cities||1st Monday of each month, 6 p.m.||Moira Rummel
|Richfield United Methodist Church
5835 Lyndale Avenue South
Minneapolis, MN 55419
MN – Twin Cities: SW Suburbs
|1st Meeting: May 10, 2016, 6:00 p.m.||Deborah Dolan
431 Prairie Center Drive
Eden Prairie, MN 55344
|OH – Akron/Canton area||2nd Wednesday of the month, 6 p.m.–7 p.m.||Erin Ferris
|Neurology and Neuroscience
701 White Pond Dr.
Akron, OH 44320
|OH – Cleveland area||2nd Saturday of the month, 1:30 p.m.–3:30 p.m.||Lauren Brasse, LISW, MSSA
216-342-5584 or 800-272-3900
Marianne Sanders, RN
23215 Commerce Park Drive, 300
Beachwood, OH 44122
|OH – Newark
||1st Thursday of the month – 2-4:00 p.m. AND 6-8:00p.m.||Vickie Bope:
|Main Newark Library
101 W. Main St.
Newark, OH 43055
|*(Phone based for adult children affected by FTD)||3rd Thursday of the month from 5 p.m.–6:30 p.m.||Led and organized by University of California, San Francisco:
Jamie C. Fong, M.S., CGC, 415-476-8613
|National phone-based support group. Contact facilitator for access number.|