Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region

Upcoming Events

Jesiii on Etsy – Jesi Rodgers, whose mother is affected with FTD, has designed a high quality art print on wooden paper.  She will donate 50% of the proceeds from the sales to AFTD.  Her piece is entitled “Remember to Love” and features a playful elephant, hearts and flowers.

To Tame a Wildflower - Laura Lytle has created FTD t-shirts that she sells on her website.  A portion of each FTD t-shirt sold will be donated to AFTD.  Simply scroll through to the page with the “Pray for the Cure 2″ FTD shirt to order.

AFTD Regional Network Coordinators

Lorene Schlie: loreneschlie@comcast.net

Research and Medical Centers with particular FTD Focus

Indiana Alzheimer Disease Center

Indiana University School of Medicine
635 Barnhill Drive
Medical Science Room A-142
Indianapolis, IN  46202-5120


Contact: 317-274-1590

Mayo Clinic, Rochester

4111 Highway 52 North
Rochester, MN 55901


Contact:  507-538-3270

Northwestern University

Cognitive Neurology & Alzheimer’s Disease Center
320 E. Superior Street, #11-453B
Chicago, IL  60611


Contact:  Darby Morhardt at 312-908-9432  or d-morhardt@northwestern.edu

University Hospitals Neurological Institute

Brain Health and Center
Parkway Medical Building
3619 Park East Dr., Suite 211
Beachwood, OH  44122


For appointments: Kathy Perkins, Secretary – 216-464-6445 or kathy.perkins@uhhospitals.org
For research and other services: Marianne Sanders, RN – 216-464-6462

Support Groups in this Region


Support group for FTD caregivers

Meeting Time:
Second Saturday of each month at 11:30 a.m.

Olive Garden
30 E. Anthony Drive
Champaign, IL

Kathy Vance at 217-493-4228 or  kv650@mchsi.com or Valli Haines at 217-260-4233 or valli.haines@sbcglobal.net.
Please call before attending a meeting for the first time.

Illinois – Chicago

For people diagnosed with PPA. Under the auspices of the Northwestern University Cognitive Neurology and Alzheimer’s Disease Center.

Early-Stage PPA Education and Support Group (for people who have been diagnosed with PPA)

Meeting time:
Alternate Thursdays, 1 to 2 :30 p.m.

Cognitive Neurology and Alzheimer’s Disease Center
Northwestern University Feinberg School of Medicine

Mary O’Hara, LCSW, at 312-503-0604 or m-ohara@northwestern.edu

For caregivers of people diagnosed with FTD and PPA. Under the auspices of the Northwestern University Cognitive Neurology and Alzheimer’s Disease Center

Meeting time:
Third Monday of the month, 6 – 7:30 p.m.

Northwestern Memorial Hospital, Downtown Chicago

Darby Morhardt, MSW, LCSW at 312-908-9432
Details posted on http://brain.northwestern.edu

Illinois – Chicago area, Downers Grove

Support Group for FTD caregivers and those with other dementias

Meeting time:
First Tuesday of the month, 7 – 8:30 p.m.

Gloria Dei Lutheran Church
4501 Main Street
Downers Grove, Illinois  60516

Lorene Schlie at loreneschlie@comcast.net

Illinois- Peoria

Support group for FTD caregivers

Meeting Time:
4th Saturday of the from 10:30 a.m. – 12:00 p.m.

Zinger Zanger Studio
929 N. Sheridan, Studio 1A
Peoria, IL  61601

Robin Allbright at 309-261-0934 or robin@zingerzanger.com
Amber Carrier at 309-275-2541 or carriermom@gmail.com

Indiana – Indianapolis

Support group sponsored by the Indiana Alzheimer Disease Center

Meeting time:
2nd Tuesday of each month, 6:30-8:30 p.m.

Indianapolis First Friends Church
3030 Kessler Blvd East Drive
Indianapolis, IN  46220

Mary Austrom, Ph.D. at mguerrie@iupui.edu or 317-331-8306 or 317-501-1774

Michigan – Grand Rapids

Co-sponsored by the Alzheimer’s Association, Greater MI Chapter

Meeting time:
First Wednesday of the month, 6:30-8:00 p.m.

Saint Mary’s Health Care
Lacks Center Grand Conference Room, Lower Level
250 Cherry Street
Grand Rapids, MI 49503

Karen S. Bugg, RN, LMSW, at 616-685-5445

Minnesota – Minneapolis/St Paul area

Co-sponsored by the Alzheimer’s Association – Minnesota-North Dakota Chapter and Bethesda Hospital, Alzheimer’s, Memory Loss & Dementia Clinic

For FTD caregivers

Meeting time:
2nd & 4th Monday of the month from 6:00 – 8:00 p.m..

Bethesda Hospital- B- Level Conference Room
559 Capitol Blvd.
St. Paul, MN  55103

Tanya Rand, MSW, LICSW – 651-232-2202 (for more information about support groups)

Also offer a support group for people caring for a loved-one with any type of dementia which meets twice on the 4th Tuesday of the month from 10 a.m. to 12 p.m. or 5:30 to 7:30 p.m. Recreational programming for people with FTD is available at no cost, while caregivers attend this support group meetings.

For more information about recreational activities, contact at Michele Neuman – 651-232-2258

Minnesota – Twin Cities area

Under the auspices of the Alzheimer’s Association – Minnesota-North Dakota Chapter

Meeting time:
First Monday of each month at 6:00 p.m.

Richfield United Methodist Church
5835 Lyndale Avenue South
Minneapolis, MN  55419

Moira Rummel at 612-920-5502

Ohio – Akron/Canton area

Under the auspices of the Alzheimer’s Association, Greater East OH area chapter

Meeting time:
2nd Wednesday of the month, 6:00-7:00 p.m.

Neurology and Neuroscience
701 White Pond Dr.
Akron, OH  44320

Erin Ferris at erin.ferris@alz.org or Karen Elliott at karen.elliott@alz.org or by phone at (330) 650-0552.

Ohio – Cleveland area

Collaboration of the Alzheimer’s Association Cleveland Area Chapter and
University Hospitals Memory and Cognition Center

Meeting time:
Second Saturday of the month, 1:30pm – 3:30p.m.

Alzheimer’s Association
23215 Commerce Park Drive, 300
Beachwood, OH 44122

Lauren Brasse, LISW, MSSA, Alzheimer’s Association
at 216-342-5584 or 800-272-3900
Marianne Sanders, RN, Memory and Cognition Center at 216-464-6462

Ohio – Columbus area

Under the auspices of the Alzheimer’s Association, Northwest OH chapter

Meeting time:
Third Saturday of the month, 9:30 – 11:30 a.m.

Alzheimer’s Association
1379 Dublin  Rd.
Columbus, Ohio  43215

Anne Bare, RNBS at 614-457-6003 or 800-272-3900

Ohio - Northwest Ohio area

Under the auspices of the Alzheimer’s Association, Central Ohio Chapter

Meeting time:
2nd Monday of the month, 6:30 – 8:00 p.m.

St. Andrew United Methodist Church (parlor room)
120 West Sandusky Street
Findlay, OH
(Park on Crawford Street; enter church through door on Cory Street)

Linda Rae Pollitz, LSW at 419-227-9700