Middle Atlantic

Delaware, Maryland, New Jersey, New York, Pennsylvania, Washington, D.C., Virginia, West Virginia

Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region

Upcoming Events

No upcoming events are scheduled at present, but please check back again soon as events are added regularly.

Awareness and Support Opportunities

Alexa Fernandez painted a picture for her grandmother, who is diagnosed with FTD, to hang in her room at her nursing home. Alexa decided she wanted to use her art work to help fight FTD. She and her mother had her painting printed on t-shirts, bags, and other fund things, and they’ll donate $5 from each item sold to AFTD. Click here to order.

Bill’s Best BBQ Sauce Raises Money for AFTD: Bill’s Best BBQ, a company selling a homemade BBQ sauce created by Bill Fehon (now affected with FTD), will donate 10% of all sales to AFTD! It’s organic, sold on Amazon.com and at several other locations, and will soon be in Whole Foods!  Check it out on Facebook.

AFTD Regional Coordinator

AFTD’s regional coordinator volunteers are the “local” ambassadors for AFTD and the principal coordinator of volunteer activities focusing on awareness, fundraising and all other aspects of the mission in his/her region. They represent AFTD throughout their region and support the volunteers. Questions not related to volunteering should be directed to AFTD’s HelpLine at 866-507-7222 or [email protected] and an AFTD staff member will be happy to assist you.

Middle Atlantic Regional Coordinators
Nancy Cummings: Delaware, Maryland, New Jersey, New York, Virginia, Washington DC, West Virginia
[email protected]
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Joanna Dauber: Pennsylvania
[email protected]
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Research and Medical Centers with FTD Focus

Alzheimer’s Disease Research Center at Mount Sinai Medical Center

Martha Stewart Center for Living & Klingenstein Clinical Health Center
1440-1450 Madison Avenue
New York, NY  10029
Director: Mary Sano, Ph.D.

http://www.mssm.edu/research/centers/alzheimers-disease-research-center

         Contact:  Julia Diaz at 212-241-9382 OR 212-241-1844

Columbia University

Sergievsky Center, Taub Institute
630 W. 168th St., P&S Box 16
New York, NY  10032

http://www.cumc.columbia.edu/dept/taub/pc-mdc.html

Contact: Jill Goldman, CGC, at 212-305-7382 or [email protected]

NYU Silberstein Alzheimer’s Institute at Langone Medical Center

The Pearl Barlow Center for Memory Evaluation and Treatment
145 East 32nd Street, 2nd Floor
New York, NY  10016
Clinical Director: James Galvin, M.D.
Associate Director: Melanie Shulman

         http://www.med.nyu.edu/psych/patient-care/outpatient-services/pearl-barlow-center

Contact: 212-263-3210

Drexel University College of Medicine

Memory and Cognitive Disorders Program
245 N. 15th St
Philadelphia, PA  19107

https://www.drexelmed.edu/Home/AboutOurFaculty/CarolLippa.aspx

Contact: 215-762-6915

Johns Hopkins University

Johns Hopkins FTD Center
600 N. Wolfe St.
Baltimore, MD 21287

http://www.hopkinsmedicine.org/Psychiatry/geriatric_neuropsychiatry/frontotemporal_dementia/

Contact: Mary Anne Wylie, M.S., RN, APN, at 410-502-2981

University of Pennsylvania

Center for FTD
3400 Spruce Street, 3 W Gates
Philadelphia, PA 19104

http://ftd.med.upenn.edu/

Contact: Christine Ray, at 215-349-5873

University of Pittsburgh

The Alzheimer Disease Research Center
UPMC Montefiore
4th Floor (Suite W-421)
3459 Fifth Avenue
Oakland, PA  15213

http://www.adrc.pitt.edu/

Contact: 412-692-2700

Support Groups in this Region

AFTD-logo-outlinesDenotes group is led by an AFTD affiliated leader who has participated in additional FTD training.
Note: Before attending your first group, please contact your facilitator for more details.

DELAWARE
DE – Rehoboth Every other Tuesday, 4 p.m.–5:30 p.m. Dr. Judith E. Pierson
(302) 703-6328
[email protected]
Henlopen Junction Mall
715 Rehoboth Avenue
Rehoboth Beach, DE
DE – Wilmington AFTD-logo-outlines
Last Friday of the month, 12 p.m. Carol Lovett
302-345-4932
Christ United Methodist Church
6 N. Clifton Street
Wilmington, DE
MARYLAND
MD – Baltimore area 2nd Wednesday of the month, 11 a.m.–12:30 p.m. Johns Hopkins FTD Clinic
410-502-2981
George Amoss
410-254-5918
[email protected]
Alzheimer’s Association
1850 York Road, Suite D
Timonium, MD 21093-5143
MD – Metro DC area
AFTD-logo-outlines
4th Monday of the month; informal networking at 6 p.m. and meeting from 6:30 p.m.–7:30 p.m. Elaine Rose
[email protected]
Arden Courts Kensington
4301 Knowles Court
Kensington, MD 20895
NEW JERSEY
NJ – Southern Delaware Valley 4th Thursday of the month, 6:30 p.m.–8 p.m Sidney Williams
800-272-3900 [email protected]
3 Eves Drive
Marlton, NJ 08053
NEW YORK
NY – Albany area
AFTD-logo-outlinesLogo plus Diminutive Warm Gray 8
3rd Tuesday of the month, 5:30 p.m.–7:30 p.m. Nancy Cummings
518-262-0800 [email protected]
Standish Community Center (Eddy Village Green)
421 W. Columbia Street
Cohoes, NY
NY – New York City area 1st and 3rd Wednesday of the month Jill Goldman, MS, MPhil CGC
212-305-7382
[email protected]
Midtown Manhattan
NY – Williamsville 2nd Wednesday of the month, 6:00 p.m.–7:00 p.m. Shelby Edgerly
716-626-0600
[email protected]
2805 Wehrle Drive
Suite 6
Williamsville, NY 14221
PENNSYLVANIA
PA-Lehigh Valley/Upper Bucks Co.
AFTD-logo-outlines
1st Thursday of the month, 7 p.m.–8:30 p.m. Susan Miller Abbott
610-346-1937
[email protected]
The School House at Richland Friends Meeting House
Mill Road and Main Street
Quakertown, PA  18951
PA – Hershey 3rd Thursday of the month, 6 p.m. –8 p.m. Claire Flaherty Craig, PhD
(717)531-1804 [email protected]
Hershey Medical Center
30 Hope Drive, Room 1019
Hershey, PA 17033

PA – Philadelphia *(Young Adult)

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3rd Wednesday of the month, 6:30 p.m.–8:30 p.m. Gary Radin
215-205-3162
[email protected]
Ralston Penn Center
Rm 346
3615 Chestnut St.
Philadelphia, PA 19104
PA – Philadelphia & Western Suburbs
AFTD-logo-outlines
2nd Thursday of the month, 7 p.m.–9 p.m. Sandy Karger
610-647-2842
[email protected]
Sylvia Gentry
267-323-2089
[email protected]
Main Line Reform Temple
410 Montgomery Avenue
Wynnewood, PA 19096
PA – Royersford 1st Tuesday of the month, 2 p.m.–3:30 p.m Riverview Adult Day Health Services
610-792-2399
Riverview Adult Day Health Services(Parkhouse Family Rm)
1600 Black Rock Road
Royersford, PA  19468
VIRGINIA
VA – Fairfax
 *(for youth of parents with dementia)
1st Saturday of the month, 12:30 p.m. -2 p.m. Stephanie Houpt [email protected] Contact facilitator for details.

VA – Richmond  

AFTD-logo-outlines 

3rd Thursday of the month, at 2:00 p.m. Angie Phelon
804-343-3045
[email protected]
TBD – Contact facilitator for details.
PHONE GROUP
*(Phone-based for adult children affected by FTD) 3rd  Thursday of the month from 5 p.m.–6:30 p.m. Led and organized by University of California, San Francisco:
Jamie C. Fong, M.S., CGC
415-476-8613
[email protected]
National phone-based support group.  Contact facilitator for access number.