Middle Atlantic

Delaware, Maryland, New Jersey, New York, Pennsylvania, Washington, D.C., Virginia, West Virginia

Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region

Upcoming Events

Food for Thought 2016: Richmond, VA – Host: Peggy Plageman – Date: October 29, 2016. Further details are here.

Philadelphia Marathon

The Philadelphia Marathon, Half Marathon, and Rothman Institute 8K will be happening the week before Thanksgiving. As a way to give thanks by raising funds to fight FTD, consider creating your own fundraiser. Through Crowdrise, the first 10 people to raise $1,000 or more, will get a free bib for the following three races:

  • Marathon (26.2 miles) — Sunday, November 20, 2016
  • Half Marathon (13.1) — Saturday, November 19, 2016
  • Rothman Institute 8K — Saturday, November 19, 2016

Those interested in starting their own campaign to raise funds for this important race, visit our Crowdrise page here.

Awareness and Support Opportunities

Alexa Fernandez painted a picture for her grandmother, who is diagnosed with FTD, to hang in her room at her nursing home. Alexa decided she wanted to use her art work to help fight FTD. She and her mother had her painting printed on t-shirts, bags, and other fund things, and they’ll donate $5 from each item sold to AFTD. Click here to order.

Bill’s Best BBQ Sauce Raises Money for AFTD: Bill’s Best BBQ, a company selling a homemade BBQ sauce created by Bill Fehon (now affected with FTD), will donate 10% of all sales to AFTD! It’s organic, sold on Amazon.com and at several other locations, and will soon be in Whole Foods!  Check it out on Facebook.

AFTD Regional Coordinator

AFTD’s regional coordinator volunteers are the “local” ambassadors for AFTD and the principal coordinator of volunteer activities focusing on awareness, fundraising and all other aspects of the mission in his/her region. They represent AFTD throughout their region and support the volunteers. Questions not related to volunteering should be directed to AFTD’s HelpLine at 866-507-7222 or [email protected] and an AFTD staff member will be happy to assist you.

Middle Atlantic Regional Coordinators

Sarah Sozansky Beil: Delaware, Maryland, Virginia, West Virginia, Washington DC
[email protected]

Nancy Cummings: New York
While Nancy is on a temporary leave of absence, please contact Kerri Barthel Keane at [email protected]

Corey Esannason: New Jersey and Pennsylvania
[email protected]

Research and Medical Centers with FTD Focus

Alzheimer’s Disease Research Center at Mount Sinai Medical Center

Martha Stewart Center for Living & Klingenstein Clinical Health Center
1440-1450 Madison Avenue
New York, NY  10029
Director: Mary Sano, Ph.D.


         Contact:  Julia Diaz at 212-241-9382 OR 212-241-1844

Columbia University

Sergievsky Center, Taub Institute
630 W. 168th St., P&S Box 16
New York, NY  10032


Contact: Jill Goldman, CGC, at 212-305-7382 or [email protected]

NYU Silberstein Alzheimer’s Institute at Langone Medical Center

The Pearl Barlow Center for Memory Evaluation and Treatment
145 East 32nd Street, 2nd Floor
New York, NY  10016
Clinical Director: James Galvin, M.D.
Associate Director: Melanie Shulman


Contact: 212-263-3210

Drexel University College of Medicine

Memory and Cognitive Disorders Program
245 N. 15th St
Philadelphia, PA  19107


Contact: 215-762-6915

Johns Hopkins University

Johns Hopkins FTD Center
600 N. Wolfe St.
Baltimore, MD 21287


Contact: Mary Anne Wylie, M.S., RN, APN, at 410-502-2981

University of Pennsylvania

Center for FTD
3400 Spruce Street, 3 W Gates
Philadelphia, PA 19104


Contact: Christine Ray, at 215-349-5873

University of Pittsburgh

The Alzheimer Disease Research Center
UPMC Montefiore
4th Floor (Suite W-421)
3459 Fifth Avenue
Oakland, PA  15213


Contact: 412-692-2700

Support Groups in this Region

AFTD-logo-outlinesDenotes group is led by an AFTD affiliated leader who has participated in additional FTD training.
Note: Before attending your first group, please contact your facilitator for more details.

DE – Rehoboth Every other Tuesday, 4 p.m.–5:30 p.m. Dr. Judith E. Pierson
(302) 703-6328
[email protected]
Henlopen Junction Mall
715 Rehoboth Avenue
Rehoboth Beach, DE
DE – Wilmington
Last Friday of the month, 12 p.m. Carol Lovett
Christ United Methodist Church
6 N. Clifton Street
Wilmington, DE
MD – Baltimore area 2nd Wednesday of the month, 11 a.m.–12:30 p.m. Johns Hopkins FTD Clinic
George Amoss
[email protected]
Alzheimer’s Association
1850 York Road, Suite D
Timonium, MD 21093-5143
MD – Columbia 4th Wednesday of the month, at 6:30 p.m. Cindy Nichols, SLP
(410) 617-7717
[email protected]
Loyola Graduate Center
8890 McGaw Rd
Columbia, MD 21045
Rm. 210/230
MD – Metro DC area
4th Monday of the month; informal networking at 6 p.m. and meeting from 6:30 p.m.–7:30 p.m. Elaine Rose
[email protected]
Arden Courts Kensington
4301 Knowles Court
Kensington, MD 20895

NJ – Florham Park


First Mtg: Wednesday, September 14, 2016, 7:00 p.m. Patricia Lombreglia
(973) 845-6777
[email protected]
Contact Facilitator for details

NJ – Southern Delaware Valley




4th Thursday of the month, 6:30 p.m.–8 p.m Sidney Williams
[email protected]
3 Eves Drive
Marlton, NJ 08053
NY – Albany area
AFTD-logo-outlinesLogo plus Diminutive Warm Gray 8
3rd Tuesday of the month, 5:30 p.m.–7:30 p.m. Nancy Cummings
518-262-0800 [email protected]
Standish Community Center (Eddy Village Green)
421 W. Columbia Street
Cohoes, NY
NY – New York City area 1st and 3rd Wednesday of the month Jill Goldman, MS, MPhil CGC
[email protected]
Midtown Manhattan
NY – Williamsville 2nd Wednesday of the month, 6:00 p.m.–7:00 p.m. Shelby Edgerly
[email protected]
2805 Wehrle Drive
Suite 6
Williamsville, NY 14221
PA-Lehigh Valley/Upper Bucks Co.
1st Thursday of the month, 7 p.m.–8:30 p.m. Susan Miller Abbott
[email protected]
The School House at Richland Friends Meeting House
Mill Road and Main Street
Quakertown, PA  18951
PA – Hershey 3rd Thursday of the month, 6 p.m. –8 p.m. Claire Flaherty Craig, PhD
(717)531-1804 [email protected]
Hershey Medical Center
30 Hope Drive, Room 1019
Hershey, PA 17033

PA – Philadelphia *(Young Adult)



3rd Wednesday of the month, 6:30 p.m.–8:30 p.m. Gary Radin
[email protected]
Ralston Penn Center
Rm 346
3615 Chestnut St.
Philadelphia, PA 19104
PA – Philadelphia & Western Suburbs
2nd Thursday of the month, 7 p.m.–9 p.m. Sandy Karger
[email protected]
Sylvia Gentry
[email protected]
Main Line Reform Temple
410 Montgomery Avenue
Wynnewood, PA 19096
PA – Royersford 1st Tuesday of the month, 2 p.m.–3:30 p.m Riverview Adult Day Health Services
Riverview Adult Day Health Services(Parkhouse Family Rm)
1600 Black Rock Road
Royersford, PA  19468
VA – Fairfax
 *(for youth of parents with dementia)
1st Saturday of the month, 12:30 p.m. -2 p.m. Stephanie Houpt [email protected] Contact facilitator for details.

VA – Richmond  


3rd Thursday of the month, at 2:00 p.m. Angie Phelon
[email protected]
Trinity United Methodist Church Library (Room 311)
903 Forest Ave.
Richmond, VA 23229
*(Phone-based for adult children affected by FTD) 3rd  Thursday of the month from 5 p.m.–6:30 p.m. Led and organized by University of California, San Francisco:
Jamie C. Fong, M.S., CGC
[email protected]
National phone-based support group.  Contact facilitator for access number.