Middle Atlantic

Delaware, Maryland, New Jersey, New York, Pennsylvania, Washington, D.C., Virginia, West Virginia

Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region

Upcoming Events

Meet and Greets

We invite you to join us for informal gathering of local families, friends, caregivers, persons diagnosed with frontotemporal degeneration and community professionals to connect, learn, discover and share.

Bethesda, MD

Who: Persons diagnosed, caregivers, professionals, family members and friends are welcome to attend.

When: Tuesday, April 18, 2017 from 7:30-9:30 pm

Where: Chevy Chase Community Library

8005 Connecticut Avenue

Chevy Chase, Maryland 20815


Why: To spend some time getting to know one another, learning about AFTD and discovering how to

get involved.

Feel free to print and share this flyer with your friends and family.

To RSVP, Please contact Sarah Sozansky Beil at sbeil.aftd@gmail.com and include “MD Meet and Greet” in your response.


Pittsburgh, PA

 Who: Persons diagnosed, caregivers, professionals, family members and friends are welcome to attend.

 When: Saturday, April 22, 2017 from 1 p.m.-3 p.m.

 Where: St. Paul’s Episcopal Church

1066 Washington Road

Mt. Lebanon, Pennsylvania 15228

Why: To spend some time getting to know one another, learning about AFTD events, programs and resources and discovering how to get involved.

Feel free to print and share this flyer with your friends and family!

 To RSVP, or for any questions, please contact Sarah Sozansky Beil at sbeil.aftd@gmail.com and include “PA Meet and Greet” in your response. An RSVP by April 19th would be appreciated, but not required.

Caregiver Conversations: Shedding Light on Current FTD Research

Featuring guest speaker Dr. Chiadi Onyike, Neuropsychiatrist and Clinical Epidemiologist, and Director of the Hopkins Young-Onset Dementias program. Don’t miss this opportunity to hear from one of the leading experts regarding frontotemporal degeneration. After the seminar, Dr. Onyike will conduct an open-forum question-and-answer session to answer all of your questions about FTD.


Wednesday, February 15th, 2017
6:30 PM – 8:00 PM
Arden Courts of Kensignton
4301 Knowles Avenue
Kensignton, MD, 20895
Ph: 301-493-7881

To RSVP, call the number listed above, or email: Kensington@arden-courts.com

 Awareness and Support Opportunities

Alexa Fernandez painted a picture for her grandmother, who is diagnosed with FTD, to hang in her room at her nursing home. Alexa decided she wanted to use her art work to help fight FTD. She and her mother had her painting printed on t-shirts, bags, and other fund things, and they’ll donate $5 from each item sold to AFTD. Click here to order.

Bill’s Best BBQ Sauce Raises Money for AFTD: Bill’s Best BBQ, a company selling a homemade BBQ sauce created by Bill Fehon (now affected with FTD), will donate 10% of all sales to AFTD! It’s organic, sold on Amazon.com and at several other locations, and will soon be in Whole Foods!  Check it out on Facebook.

AFTD Regional Coordinator Volunteers

AFTD’s regional coordinator volunteers are the “local” ambassadors for AFTD and the principal coordinator of volunteer activities focusing on awareness, fundraising and all other aspects of the mission in his/her region. They represent AFTD throughout their region and support the volunteers. Questions not related to volunteering should be directed to AFTD’s HelpLine at 866-507-7222 or info@theaftd.org and an AFTD staff member will be happy to assist you.

Middle Atlantic Regional Coordinators

Sarah Sozansky Beil: Delaware, Maryland, Virginia, West Virginia, Washington DC

Nancy Cummings: New York

Corey Esannason: New Jersey and Pennsylvania

Research and Medical Centers with FTD Focus

Alzheimer’s Disease Research Center at Mount Sinai Medical Center

Martha Stewart Center for Living & Klingenstein Clinical Health Center
1440-1450 Madison Avenue
New York, NY  10029
Director: Mary Sano, Ph.D.


         Contact:  Julia Diaz at 212-241-9382 OR 212-241-1844

Columbia University

Sergievsky Center, Taub Institute
630 W. 168th St., P&S Box 16
New York, NY  10032


Contact: Jill Goldman, CGC, at 212-305-7382 or jg2673@columbia.edu

NYU Silberstein Alzheimer’s Institute at Langone Medical Center

The Pearl Barlow Center for Memory Evaluation and Treatment
145 East 32nd Street, 2nd Floor
New York, NY  10016
Clinical Director: James Galvin, M.D.
Associate Director: Melanie Shulman


Contact: 212-263-3210

Drexel University College of Medicine

Memory and Cognitive Disorders Program
245 N. 15th St
Philadelphia, PA  19107


Contact: 215-762-6915

Johns Hopkins University

Johns Hopkins FTD Center
600 N. Wolfe St.
Baltimore, MD 21287


Contact: Mary Anne Wylie, M.S., RN, APN, at 410-502-2981

University of Pennsylvania

Center for FTD
3400 Spruce Street, 3 W Gates
Philadelphia, PA 19104


Contact: Christine Ray, at 215-349-5873

University of Pittsburgh

The Alzheimer Disease Research Center
UPMC Montefiore
4th Floor (Suite W-421)
3459 Fifth Avenue
Oakland, PA  15213


Contact: 412-692-2700

Support Groups in this Region

AFTD-logo-outlinesDenotes group is led by an AFTD affiliated leader who has participated in additional FTD training.
Note: Before attending your first group, please contact your facilitator for more details.

DE – Rehoboth Every other Tuesday, 4 p.m.–5:30 p.m. Dr. Judith E. Pierson
(302) 703-6328
Henlopen Junction Mall
715 Rehoboth Avenue
Rehoboth Beach, DE
DE – Wilmington
Last Friday of the month, 12 p.m. Carol Lovett
Christ United Methodist Church
6 N. Clifton Street
Wilmington, DE
MD – Baltimore area 2nd Wednesday of the month, 11 a.m.–12:30 p.m. Johns Hopkins FTD Clinic
410-502-2981George Amoss
Alzheimer’s Association
1850 York Road, Suite D
Timonium, MD 21093-5143

MD – Columbia

(PPA Group)

4th Wednesday of the month, at 1:00 p.m. Cindy Nichols, SLP
(410) 617-7717
Loyola Graduate Center
8890 McGaw Rd
Columbia, MD 21045
Rm. 210/230
MD – Frederick
2nd Wednesday of the month, 5:00 p.m. Susan Elder Murphy
(301) 593-5285
smurphy@care-manager.comJane Barnes
Somerford Assisted Living
2100 Whittier Dr.
Frederick, MD 21702
MD – Metro DC area
4th Monday of the month; informal networking at 6 p.m. and meeting from 6:30 p.m.–7:30 p.m. Elaine Rose
Arden Courts Kensington
4301 Knowles Court
Kensington, MD 20895

NJ – Florham Park


First Mtg: Wednesday, September 14, 2016, 7:00 p.m. Patricia Lombreglia
(973) 845-6777
Contact Facilitator for details

NJ – Southern Delaware Valley




4th Thursday of the month, 6:30 p.m.–8 p.m Sidney Williams
3 Eves Drive
Marlton, NJ 08053
NY – Albany area
AFTD-logo-outlinesLogo plus Diminutive Warm Gray 8
3rd Tuesday of the month, 5:30 p.m.–7:30 p.m. Nancy Cummings
518-262-0800 cumminN@mail.amc.edu
Standish Community Center (Eddy Village Green)
421 W. Columbia Street
Cohoes, NY
NY – Long Island
4th Saturday of the month, 11 a.m.-12:30 p.m. Barbara Hala
St. John’s Lutheran Church
47 Winthrop Avenue
Williston Park, NY 11596
(Side entrance)
NY – New York City area 1st and 3rd Wednesday of the month Jill Goldman, MS, MPhil CGC
Midtown Manhattan
NY – Williamsville 2nd Wednesday of the month, 6:00 p.m.–7:00 p.m. Shelby Edgerly
2805 Wehrle Drive
Suite 6
Williamsville, NY 14221
PA-Lehigh Valley/Upper Bucks Co.
1st Thursday of the month, 7 p.m.–8:30 p.m. Susan Miller Abbott
The School House at Richland Friends Meeting House
Mill Road and Main Street
Quakertown, PA  18951
PA – Hershey 3rd Thursday of the month, 6 p.m. –8 p.m. Claire Flaherty Craig, PhD
(717)531-1804 cflahertycraig@hmc.psu.edu
Hershey Medical Center
30 Hope Drive, Room 1019
Hershey, PA 17033

PA – Philadelphia *(Young Adult)



3rd Wednesday of the month, 6:30 p.m.–8:30 p.m. Gary Radin
Ralston Penn Center
Rm 346
3615 Chestnut St.
Philadelphia, PA 19104
PA – Philadelphia & Western Suburbs
2nd Thursday of the month, 7 p.m.–9 p.m. Sandy Karger
Karger522@gmail.comSylvia Gentry
Main Line Reform Temple
410 Montgomery Avenue
Wynnewood, PA 19096
PA – Royersford 1st Tuesday of the month, 2 p.m.–3:30 p.m Riverview Adult Day Health Services
Riverview Adult Day Health Services(Parkhouse Family Rm)
1600 Black Rock Road
Royersford, PA  19468
VA – Fairfax
 *(for youth of parents with dementia)
1st Saturday of the month, 12:30 p.m. -2 p.m. Stephanie Houpt stephanie.houpt@insightmcc.org Contact facilitator for details.

VA – Richmond  


3rd Thursday of the month, at 2:00 p.m. Angie Phelon
Contact facilitator for details.
*(Phone-based for adult children affected by FTD) 3rd Thursday of the month from 5 p.m.–6:30 p.m.

Led and organized by University of California, San Francisco:

Jamie C. Fong, M.S., CGC

National phone-based support group. Contact facilitator for access number.