Middle Atlantic

Delaware, Maryland, New Jersey, New York, Pennsylvania, Washington, D.C., Virginia, West Virginia

Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region

Upcoming Events

Food for Thought: Abandon Brewing Company (Penn Yan, NY)
Saturday, October 3, 2015, from 12:00 p.m. to 5:00 p.m.
2994 Merritt Hill Road
Penn Yan, NY  14527
On October 3rd, from 12:00 p.m. to 5:00 p.m., enjoy food with suggested beer pairings, while listening to music at Abandon Brewing, located in a renovated 1800’s barn overlooking Keuka Lake in the Fingerlakes. The brewery will donate proceeds from the day to AFTD.
Contact: Cathy Sperrick at [email protected]

Food for Thought: Eat Ice Cream for Bob
October 4-11, 2015
Family and friends pick a day during the week of October 4-11 to either make a trip to their favorite ice cream parlor, invite people in to have ice cream in their homes or just eat ice cream in their homes in memory of Bob Matusiak, who recently passed after a 10-year-long bout with FTD. Individuals who participate will be asked to post a photo of their participation on Facebook and make a contribution to AFTD in memory of Bob.
Contact: Elaine Rose at [email protected]

Food for Thought: ‘A Bite to Fight FTD’
October 4-11, 2015
This Social Media event will raise FTD awareness by asking friends, family and colleagues to video-record themselves getting ready to enjoy their favorite sandwich, saying they support the fight against FTD, describing what’s on their favorite sandwich, taking a bite, and then challenging a friend to do the same.
Contact: Brian Rose at [email protected]

Food for Thought: Cindy’s Cakes (Columbia, MD)
Cindy’s Cakes is named after Jennifer’s mother’s famous cakes. Event organizers are accepting pre-orders for mini-cakes, each costing $3, which will be distributed on October 4th to anyone in Central Maryland.
Contact: Jennifer Morabito at [email protected]

Food for Thought: Dinner (Washington, D.C.)
Tuesday, October 6, 2015, 6:00 p.m. to 8:00 p.m.

Cleveland Park Bar & Grill
3421 Connecticut Ave NW
Washington, D.C. 20008

Jamie Farid will ask diners at the Cleveland Park Bar & Grill for a minimum contribution of $10 donation at the door, with donations benefiting AFTD’s mission.

Food for Thought: The Labyrinth (Washington, D.C.)
Wednesday, October 7, 2015
The Church of the Epiphany
1317 G St. NW
Washington, DC 20005
This campaign kicks off on October 7th and has the goal of raising $10,000 for FTD research. Olivia will speak about her experience with FTD, and then invite the participants to walk the labyrinth and donate to support the fundraising goal. The labyrinth is an ancient tool for prayer and walking meditation.
Contact: Olivia Gray at  [email protected]

Food for Thought: Open House (Whippany, NJ)
Thursday, October 9, 2015

Arden Courts Memory Care Community
18 Eden Lane
Whippany, NJ 07981
There will be an Open House at Arden Courts Memory Care Community on Friday, October 9th, from 10:00 a.m. to 3:00 p.m. There will be information available on brain health, healthy eating and FTD awareness and literature, as well as refreshments. All proceeds from the sale of refreshments benefit AFTD.
Contact: Michelle Breaud at [email protected] or 973-581-1800; or Marge Ramos at [email protected].

Russell Zomback is running in another marathon to benefit AFTD!  Marathon-for-Dad is in memory of his dad, Paul. Russell  is raising money not only to help find a cure for FTD, but to help the families/caregivers of those afflicted with this terrible disease. The race is in Atlantic City on October 18, 2015. Please visit his Givezooks fundraising page:https://theaftd.givezooks.com/grassroots_fundraisers/marathon-for-dad

Alexa Fernandez painted a picture for her grandmother, who is diagnosed with FTD, to hang in her room at her nursing home. Alexa decided she wanted to use her art work to help fight FTD. She and her mother had her painting printed on t-shirts, bags, and other fund things, and they’ll donate $5 from each item sold to AFTD. Click here to order.

Bill’s Best BBQ Sauce Raises Money for AFTD: Bill’s Best BBQ, a company selling a homemade BBQ sauce created by Bill Fehon (now affected with FTD), will donate 10% of all sales to AFTD! It’s organic, sold on Amazon.com and at several other locations, and will soon be in Whole Foods!  Check it out on Facebook.

AFTD Regional Coordinator

AFTD’s regional coordinator volunteers are the “local” ambassadors for AFTD and the principal coordinator of volunteer activities focusing on awareness, fundraising and all other aspects of the mission in his/her region. They represent AFTD throughout their region and support the volunteers. Questions not related to volunteering should be directed to AFTD’s HelpLine at 866-507-7222 or [email protected] and an AFTD staff member will be happy to assist you.

Middle Atlantic Regional Coordinators
Nancy Cummings: Delaware, Maryland, New Jersey, New York, Virginia, Washington DC, West Virginia
[email protected]

Joanna Dauber: Pennsylvania
[email protected]

Research and Medical Centers with particular FTD Focus

Alzheimer’s Disease Research Center at Mount Sinai Medical Center

Martha Stewart Center for Living & Klingenstein Clinical Health Center
1440-1450 Madison Avenue
New York, NY  10029
Director: Mary Sano, Ph.D.


         Contact:  Julia Diaz at 212-241-9382 OR 212-241-1844

Columbia University

Sergievsky Center, Taub Institute
630 W. 168th St., P&S Box 16
New York, NY  10032


Contact: Jill Goldman, CGC, at 212-305-7382 or [email protected]

NYU Silberstein Alzheimer’s Institute at Langone Medical Center

The Pearl Barlow Center for Memory Evaluation and Treatment
145 East 32nd Street, 2nd Floor
New York, NY  10016
Clinical Director: James Galvin, M.D.
Associate Director: Melanie Shulman


Contact: 212-263-3210

Drexel University College of Medicine

Memory and Cognitive Disorders Program
245 N. 15th St
Philadelphia, PA  19107


Contact: 215-762-6915

Johns Hopkins University

Johns Hopkins FTD Center
600 N. Wolfe St.
Baltimore, MD 21287


Contact: Mary Anne Wylie, M.S., RN, APN, at 410-502-2981

University of Pennsylvania

Center for FTD
3400 Spruce Street, 3 W Gates
Philadelphia, PA 19104


Contact: Christine Ray, at 215-349-5873

University of Pittsburgh

The Alzheimer Disease Research Center
UPMC Montefiore
4th Floor (Suite W-421)
3459 Fifth Avenue
Oakland, PA  15213


Contact: 412-692-2700

Support Groups in this Region

Delaware – Rehoboth area

Meeting time:
Every other Tuesday, 4  to 5:30 p.m.

Henlopen Junction Mall
715 Rehoboth Avenue
Rehoboth Beach, DE

Dr. Judith E. Pierson at (302) 703-6328 or [email protected] to verify the date
of the next meeting or for additional information

Delaware – Wilmington area

Under the auspices of the Alzheimer’s Association Delaware Valley Chapter

Meeting time:
Last Friday of the month, 12 p.m. (attendees are welcome to bring lunch)

Christ United Methodist Church
6 N. Clifton Street
Wilmington, DE

Carol Lovett at 302-345-4932

Maryland – Baltimore area

Under the auspices of Johns Hopkins Medical Institutions, FTD Clinic and the Alzheimer’s Association, Maryland Chapter 

Meeting time:
Second Wednesday of the month, 11 a.m. to 12:30 p.m.

Alzheimer’s Association
1850 York Road, Suite D
Timonium, MD 21093-5143

Johns Hopkins FTD Clinic at 410-502-2981 or George Amoss at [email protected] or 410-254-5918.

Maryland – Metro DC area

Sponsored by Arden Courts of Kensington

Meeting time:
4th Monday of the month; informal networking at 6 p.m., meeting from 6:30 to 7:30 p.m.

Meeting location:
Arden Courts Kensington
4301 Knowles Court
Kensington, MD 20895

Elaine Rose at [email protected]

New Jersey – Southern Delaware Valley

Under the auspices of the Alzheimer’s Association Delaware Valley Chapter

Meeting time:
Fourth Thursday of the month, 6:30 to 8 p.m.

3 Eves Drive
Marlton, NJ 08053

Sidney Williams at 800-272-3900 or [email protected]

       New York – Albany area

Meeting time:
Third Tuesday of the month, 5:30 – 7:30 p.m.

Standish Community Center on the campus of Eddy Village Green 421 W. Columbia Street, Cohoes, NY

Nancy Cummings at 518-262-0800 or [email protected]

New York – Central Long Island

Meeting time:
2nd Tuesday of the month from 6:30 – 8:00 p.m.

Alzheimer’s Disease Resource Center
45 Park Ave.
Bayshore, NY 11706


Melissa Gallagher CTRS, CDP, 631-796-8477
Alzheimer’s Disease Resource Center: (631) 580-5100

New York – New York City area

Under the auspices of Columbia University and the NY chapter of the Alzheimer’s Association

Meeting time:
First and third Wednesday of each month


Midtown Manhattan

Jill Goldman, MS, MPhil, CGC, at 212-305-7382 or [email protected]

Pennsylvania – Lehigh Valley and Upper Bucks Co.

Meeting time:
First Thursday of the month, 7 to 8:30 p.m.

The School House at Richland Friends Meeting House
Mill Road and Main Street
Quakertown, PA  18951

Susan Miller Abbott at 610-346-1937 or [email protected]

Pennsylvania – Hershey area

Under the auspices of the Penn State Hershey Medical Center Memory and
Cognitive Disorders Clinic

Meeting time:
Third Thursday of the month, 6 to 8 p.m.

Hershey Medical Center
30 Hope Drive, Room 1019
Hershey, PA 17033

Claire Flaherty Craig, PhD at (717)531-1804 or [email protected]

Pennsylvania – Philadelphia

Targeted to younger adult children in their 20s, 30s and 40s caring for a parent diagnosed with dementia
under the age of 65.  Under the auspices of the Delaware Valley Chapter of the Alzheimer’s Association.

Meeting time:
Third Wednesday of the month, 6:30 to 8:30 p.m.

Ralston Penn Center, Room 346
3615 Chestnut St.
Philadelphia, PA 19104

Call at 800-272-3900 or Gary Radin at [email protected]

Pennsylvania – Philadelphia, Western suburbs

Under the auspices of the Delaware Valley Chapter of the Alzheimer’s Association

Meeting time:

Second Thursday of the month, 7 to 9 p.m.

Main Line Reform Temple
410 Montgomery Avenue
Wynnewood, PA 19096

Contact: Sandy Karger – via email: :  [email protected] or via phone at 610-647-2842
Sylvia Gentry – via email: [email protected] or via phone at 267-323-2089

Pennsylvania – Pittsburgh area

Meeting time:
Second Tuesday of the month, 11:30 a.m. to 1:00 p.m.

Kings Restaurant (Room #2)
105 Vip Drive
Wexford, PA  15090

Jim Rodgers at 724-776-1205 or via email at: [email protected]

Pennsylvania – Royersford

Under the auspices of the Alzheimer’s Association Delaware Valley Chapter

Meeting time:
First Tuesday of the month, 2 to 3:30 p.m.

Riverview Adult Day Health Services at Parkhouse Family Room
1600 Black Rock Road
Royersford, PA  19468

Riverview Adult Day Health Services at 610-792-2399