Middle Atlantic

Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region

Upcoming Events

Spartan Race for AFTD- Kristen Rossi will take on the three mile obstacle course in honor of her mother in law on September 20th in Philadelphia. To support Kristen, visit her fundraising page.

Food for Thought in NY- Laura Kelahan is hosting a bowling event at 12:30pm on Sunday, October 5th at Transit Lanes, 7850 Transit Road, Williamsville, NY 14221. The event is $20 for adults/$15 for kids 12 and under and will include 3 games, shoe rental and a buffet lunch. Several service organizations will also be present to educate local caregivers about the healthcare services that are available in the area.

Food for Thought in PA- Visit the Main Line Art Center in Haverford, PA on Tuesday, October 7th at 4:30 pm for an afternoon of networking, learning about resources in the Philadelphia area and touring the art center’s current exhibition. See the event flyer for more information.

Food for Thought in MA- Wendy Miller-Anello is hosting an wine and chocolate tasting on October 8th from 6:30-9pm at Watson’s Candies, 761 Main Street, Walpole, MA. Contact Wendy at wendy.anello@comcast.net for more information.

Food for Thought in NJ- Nancy Cummings is hosting an informational evening including a brief talk about FTD, a viewing of It Is What It Is, and finishing the night off with a Patsy Cline impersonator. The event is at the Standish Community Center at 421 W Columbia Street, Cohoes, NJ 12047 on October 8th at 6pm.

Food for Thought in NJ- Join Linda Ciccarelli for an evening of dinner and music on October 9th at 7pm at the Elks Lodge, 230 Parsippany Road, Parsippany, NJ. For more information, contact Linda at lciccarelli5@gmail.com

Food for Thought in NY- Brian Rose is hosting an online fundraiser for Food for Thought, as well as collecting recipes to create a cookbook of simple recipes for caregivers to ease the burden of mealtime. Visit Brian’s fundraising page if you’d like to support his efforts, or email him at brian.rose@gmail.com if you have an easy and tasty recipe you’d like to contribute.

NYC Marathon- Ben Austin is participating in the New York City Marathon to raise money for AFTD! To read Ben’s story and support his efforts, visit his fundraising page.

Bill’s Best BBQ Sauce Raises Money for AFTD: Bill’s Best BBQ, a company selling a homemade BBQ sauce created by Bill Fehon (now affected with FTD), will donate 10% of all sales to AFTD! It’s organic, sold on Amazon.com and at several other locations, and will soon be in Whole Foods!  Check it out on Facebook.

AFTD Regional Network Coordinators

Nancy Cummings – nancycummings36@gmail.com
New York, New Jersey, Delaware, Maryland, Washington DC, Virginia, West Virginia

Joanna Dauber – jdauber.aftd@gmail.com
Pennsylvania

Research and Medical Centers with particular FTD Focus

Alzheimer’s Disease Research Center at Mount Sinai Medical Center

Martha Stewart Center for Living & Klingenstein Clinical Health Center
1440-1450 Madison Avenue
New York, NY  10029
Director: Mary Sano, Ph.D.

http://www.mssm.edu/research/centers/alzheimers-disease-research-center

         Contact:  Julia Diaz at 212-241-9382 OR 212-241-1844

Columbia University

Sergievsky Center, Taub Institute
630 W. 168th St., P&S Box 16
New York, NY  10032

http://www.cumc.columbia.edu/dept/taub/pc-mdc.html

Contact: Jill Goldman, CGC, at 212-305-7382 or jg2673@columbia.edu

NYU Silberstein Alzheimer’s Institute at Langone Medical Center

The Pearl Barlow Center for Memory Evaluation and Treatment
145 East 32nd Street, 2nd Floor
New York, NY  10016
Clinical Director: James Galvin, M.D.
Associate Director: Melanie Shulman

          http://aging.med.nyu.edu/the-barlow-center

Contact: 212-263-3210

Drexel University College of Medicine

Memory and Cognitive Disorders Program
245 N. 15th St
Philadelphia, PA  19107

https://www.drexelmed.edu/Home/AboutOurFaculty/CarolLippa.aspx

Contact: 215-762-6915

Johns Hopkins University

Johns Hopkins FTD Center
600 N. Wolfe St.
Baltimore, MD 21287

http://www.hopkinsmedicine.org/Psychiatry/geriatric_neuropsychiatry/frontotemporal_dementia/

Contact: Mary Anne Wylie, M.S., RN, APN, at 410-502-2981

University of Pennsylvania

Center for FTD
3400 Spruce Street, 3 W Gates
Philadelphia, PA 19104

http://ftd.med.upenn.edu/

Contact: Christine Ray, at 215-349-5873

University of Pittsburgh

The Alzheimer Disease Research Center
UPMC Montefiore
4th Floor (Suite W-421)
3459 Fifth Avenue
Oakland, PA  15213

http://www.adrc.pitt.edu/

Contact: 412-692-2700

Support Groups in this Region

Delaware – Rehoboth area

Meeting time:
Every other Tuesday, 4  to 5:30 p.m.

Location:
Henlopen Junction Mall
715 Rehoboth Avenue
Rehoboth Beach, DE

Contact:
Dr. Judith E. Pierson at (302) 703-6328 or judithpierson@juno.com to verify the date
of the next meeting or for additional information

Delaware – Wilmington area

Under the auspices of the Alzheimer’s Association Delaware Valley Chapter

Meeting time:
Last Friday of the month, 12 p.m. (attendees are welcome to bring lunch)

Location:
Christ United Methodist Church
6 N. Clifton Street
Wilmington, DE

Contact:
Carol Lovett at 302-345-4932

Maryland – Baltimore area

Under the auspices of Johns Hopkins Medical Institutions, FTD Clinic and the Alzheimer’s Association, Maryland Chapter 

Meeting time:
Second Wednesday of the month, 11 a.m. to 12:30 p.m.

Location:
Alzheimer’s Association
1850 York Road, Suite D
Timonium, MD 21093-5143

Contact:
Johns Hopkins FTD Clinic at 410-502-2981 or George Amoss at daruma@qis.net or 410-254-5918.

Maryland – Metro DC area

Sponsored by Arden Courts of Kensington

Meeting time:
4th Monday of the month; informal networking at 6 p.m., meeting from 6:30 to 7:30 p.m.

Meeting location:
Arden Courts Kensington
4301 Knowles Court
Kensington, MD 20895

Contact:
Elaine Rose at errose36@gmail.com

New Jersey – North Jersey / Hackettstown

Meeting time:
The first Tuesday of every month, 7 p.m.

Meeting location:
House of the Good Shepherd (in their library on the first floor)
798 Willow Grove St.
Hackettstown, NJ 07840
908-684-5900

Contact:
Susan Rebholz at 908-399-2090 or skrrn@comcast.net, or Greg Wilson at 908-832-7322 or  wgregw3@juno.com for more information.

New Jersey – Southern Delaware Valley

Under the auspices of the Alzheimer’s Association Delaware Valley Chapter

Meeting time:
Fourth Thursday of the month, 6:30 to 8 p.m.

Location:
3 Eves Drive
Marlton, NJ 08053

Contact:
Sidney Williams at 800-272-3900 or Sidney.Williams@alz.org

         New York – Albany area

Meeting time:
Third Wednesday of the month, 5:30 – 7:30 p.m.

Location:
Standish Community Center on the campus of Eddy Village Green 421 W. Columbia Street, Cohoes, NY

Contact:
Nancy Cummings at 518-262-0800 or cumminN@mail.amc.edu

New York – Central Long Island

Meeting time:
2nd Tuesday of the month from 6:30 – 8:00 p.m.

Location:
Alzheimer’s Disease Resource Center
45 Park Ave.
Bayshore, NY 11706

http://www.adrcinc.org/Index.asp

Contact:
Melissa Gallagher CTRS, CDP, 631-796-8477

New York – New York City area

Under the auspices of Columbia University and the NY chapter of the Alzheimer’s Association

Meeting time:
First and third Wednesday of each month

Location:

Midtown Manhattan

Contact:
Jill Goldman, MS, MPhil, CGC, at 212-305-7382 or jg2673@columbia.edu

Pennsylvania – Allentown area

Meeting time:
First Thursday of the month, 7 to 8:30 p.m.

Location:
The School House at Richland Friends Meeting House
Mill Road and Main Street
Quakertown, PA  18951

Contact:
Susan Miller Abbott at 610-346-1937 or NASIsma@aol.com

Pennsylvania – Hershey area

Under the auspices of the Penn State Hershey Medical Center Memory and
Cognitive Disorders Clinic

Meeting time:
Third Thursday of the month, 6 to 8 p.m.

Location:
Hershey Medical Center
30 Hope Drive, Room 1019
Hershey, PA 17033

Contact:
Claire Flaherty Craig, PhD at (717)531-1804 or cflahertycraig@hmc.psu.edu

Pennsylvania – Philadelphia

Targeted to younger adult children in their 20s, 30s and 40s caring for a parent diagnosed with dementia
under the age of 65.  Under the auspices of the Delaware Valley Chapter of the Alzheimer’s Association.

Meeting time:
Third Wednesday of the month, 6:30 to 8:30 p.m.

Location:
Ralston Penn Center, Room 346
3615 Chestnut St.
Philadelphia, PA 19104

Contact:
Call at 800-272-3900 or Gary Radin at gary@garyradin.com

Pennsylvania – Philadelphia, Western suburbs

Under the auspices of the Delaware Valley Chapter of the Alzheimer’s Association

Meeting time:

Second Thursday of the month, 7 to 9 p.m.

Location:
Main Line Reform Temple
410 Montgomery Avenue
Wynnewood, PA 19096

Contact: Sandy Karger – via email: 98sandra@comcast.net or via phone at 610-647-2842
Sylvia Gentry – via email: sylviabgentry@gmail.com or via phone at 267-323-2089

Pennsylvania – Pittsburgh area

Meeting time:
Second Tuesday of the month, 11:30 a.m. to 1:00 p.m.

Location:
Kings Restaurant (Room #2)
105 Vip Drive
Wexford, PA  15090

Contact:
Jim Rodgers at 724-776-1205 or via email at: jrodgers7@zoominternet.net

Pennsylvania – Royersford

Under the auspices of the Alzheimer’s Association Delaware Valley Chapter

Meeting time:
First Tuesday of the month, 2 to 3:30 p.m.

Location:
Riverview Adult Day Health Services at Parkhouse Family Room
1600 Black Rock Road
Royersford, PA  19468

Contact:
Riverview Adult Day Health Services at 610-792-2399