AFTD’s Food for Thought

FfTlogoFood for Thought (FFT) is a grassroots fundraising and awareness-raising campaign designed to rally as many supporters of AFTD as possible during the first week of October (5th – 12th) across the U.S.   Our collective effort to raise awareness will hopefully draw the media’s attention and garner some great press for FTD.

As we all know, frontotemporal degeneration (FTD) is a life-altering disease for those affected as well as their loved ones. Yet it is little known and poorly understood. This campaign seeks to make more people aware of FTD while involving some food/drink and a little education. Event hosts can plan and organize any type of event as long as food is included.

AFTD’s Food for Thought Goal: To have at least one person in every state host a Food for Thought event! And, as a little incentive, we’re throwing out a challenge: the state that hosts the most number of events will get a page on AFTD’s website dedicated to their Food for Thought stories for an entire year. Each organizer will get a picture and a short write-up about their Food for Thought event…and bragging rights until next October!

So…are you hungry enough to take a bite out of FTD? Ready to join people from Maine to California who will share a meal and provide some FTD education with their friends and family (and hopefully the media)? If so, we want to hear from you – fill out the FFT Contact Form! AFTD has a Food for Thought Toolkit  and a list of sample events and frequently asked questions to help you get started. Contact AFTD’s volunteer manager, Kerri Barthel, at or (267) 514-7221 with any questions.

We’re looking forward to seeing what all of our voices together can do to raise awareness of FTD! Don’t sit this one out…we have a great opportunity to make a REAL difference and draw national attention to FTD!

In 2013, the campaign raised approximately $50,000 with events in 25 states and 5 Canadian provinces.  Click here for the state that held the most number of events in 2013!

AFTD is proud to have two Food for Thought youth ambassadors, Kennedy Ho and Olivia Goldring, join this year’s campaign to encourage other young people to step up and help raise awareness among classmates and friends.

Kennedy and Olivia came up with several event ideas for young FFT hosts.  Talk with a parent about what you want to do and feel free to come up with your own creative event.

Kennedy Ho, 16 years old

Kennedy_BaNgoai-crop I was devastated to find out that there was no cure or treatment for frontotemporal degeneration. I had not heard of FTD until my grandma’s diagnosis. I want to bring awareness to this disease, because it strikes people who are in the age range of my parents, my grandparents, my teachers, my coaches. For this reason, FTD could significantly impact the lives of people my age – the way it has impacted mine. I want people to be able to understand what FTD is and how it affects a person both physically and emotionally. If people are aware, they could help support AFTD and its efforts to further research in finding a  treatment  and, hopefully, a cure.


Olivia Goldring, 17 years old
Olivia graduation

I was only 8 when I began to see the affects of FTD in my mom. She passed away when I was in 10th grade of high school. AFTD was able to provide information, resources and guidance to my dad. I wanted to do something to honor the memory of my mom and raise money for AFTD at the same time. One fundraiser led to another and to date I have organized a total of 7 fundraisers so far over the past 4 years. A couple of my fundraisers included a walk-a-thon at my school and a 4-mile run in Central Park. For my first walk-a-thon I was touched by the enthusiasm and generosity of the school. It was awesome to see everyone walking and participating. It was the first time a student-led extracurricular activity was proposed and approved. I have learned that amazing things can be accomplished when people pull together for a collective effort.


Serve some Food.   Share your Story.  Spread the Word