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Connie Kunkle Memory Walk and Celebration of Life

Connie Kunkle, recently known for being an on-air host on Evine (formerly ShopNBC) was diagnosed with FTD in 2015 and passed away in 2016. Her closest friends and family have planned a Memory Walk and Celebration of Life in her memory, centralized around a very special place to Connie: Lake Eola in Orlando, FL. All are welcome to attend the Memory Walk and walk in honor or memory of a loved one who is or has suffered from dementia or any illness or condition.

All event proceeds will benefit AFTD’s With Love campaign. Please click here to visit the campaign page created in memory of Connie. Additionally, eight restaurants around Lake Eola are participating in a “giveback night” on the Friday of the Memory Walk. A percent of each bill that mentions the Memory Walk will be donated to AFTD. Please see the details below for more information on the events.

Memory Walk:

Celebration of Life:

Participating Restaurants:

  1. Relax Grill at Lake Eola
  2. Mucho Tequila and Tacos
  3. Eola Wine Company
  4. Dexter’s of Thornton Park
  5. Soco
  6. 301 Lakeside
  7. Baoery Asian Gastropub
  8. Shari Sushi Lounge

Contact AFTD’s Grassroots Events Coordinator, Bridget Graham with any questions:

AFTD Employment Opportunity: Chief Financial Officer

AFTD is recruiting for a newly-created Chief Financial Officer position. Please share widely this opportunity to play a pivotal leadership role in the organization’s work to drive research to a cure, and improve quality of life for all affected by FTD.

2/15: AFTD Meet & Greet in Colorado

Join AFTD Volunteer Colleen Seymour and AFTD Southwest Regional Coordinator Volunteer, Kathy Urban to connect with others in your area whose lives have also been affected by FTD.  Learn more about AFTD events, programs and resources, and discover how you can get involved while sharing time with others in your community!
When: Saturday, February 18th, 2017
Time: 10:00 a.m. – 12:00 p.m.

Where: Ross-Cherry Creek Library

305 Milwaukee Street
Denver, CO 80206
Phone: 720-865-0120
Visit the Library’s website here.
Feel free to print and share this flyer with your friends and family.
Please RSVP to Kathy Urban at by February 15th.

AFTD Awards $2 Million to Advance Biomarkers Research Targeting Young-Onset Dementia

Doctors often rely on biomarkers – objective, easily measured biological features that indicate underlying pathology— to support accurate diagnosis and treatment efforts. Blood pressure, for example, is a widely-used biomarker for cardiovascular disease. Today, no comparable measures exist for FTD. The Association for Frontotemporal Degeneration (AFTD) aims to address these challenges with the award of $2 million to fund cutting-edge research into the discovery of FTD biomarkers.

After reviewing proposals from leading researchers worldwide, an expert panel has selected five researchers for multi-year FTD Biomarker awards. Recently released on PRNewswire, the full press release can be seen here.

Calif. Researcher Receives $11 Million Grant to Study Tau-FTD Link

A researcher at the Gladstone Institutes in California has been awarded an $11 million grant by the National Institute of Neurological Disorders and Stroke to study the link between tau, a protein that naturally occurs in the human body, and the development of frontotemporal degeneration. Li Gan, PhD, a senior investigator at the Gladstone Institute of Neurological Disease, will use the grant to launch a three-part project investigating the ways in which neurons mishandle tau, and whether the resulting neuronal dysfunction may contribute to FTD. Dr. Gan will use stem cells derived from people with FTD to conduct her research.