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Share Your Stories, Advance FTD Science with the FTD Disorders Registry

The FTD Disorders Registry, the first-ever online registry designed to bring together persons diagnosed with frontotemporal degeneration, their caregivers and family members, has officially launched. Accessible at ftdregistry.org, the Registry gives people affected by FTD the opportunity to teach researchers about the various FTD disorders by securely sharing their stories, thereby informing their work toward developing treatments and, ultimately, a cure. In return, Registry participants will receive recruitment notifications for upcoming clinical studies as well as research news updates. AFTD and the Bluefield Project to Cure Frontotemporal Dementia co-founded the registry with generous support from the Rainwater Charitable Foundation’s Tau Consortium program. For more information, visit ftdregistry.org.

Seattle Super Run: June 10, 2017

Join select AFTD staff and members of the local community as we bring greater FTD awareness to the surrounding Seattle area and raise funds to help people affected by FTD. The AFTD-Team will participate in the Seattle Super Run on June 10th, as an Official Charity Partner. We hope you’ll join us for a morning of friendship and awareness. Race distances include: 5K (3.1 miles). Please click here for more information.

King of Prussia 10 Miler 5K: May 21, 2017

Join select AFTD staff and members of the local community as we bring greater FTD awareness to the surrounding Pennsylvania area and raise funds to help people affected by FTD. The AFTD-Team will participate in the King of Prussia 10 Miler 5K Walk/Run on May 21st. We hope you’ll join us for a morning of friendship and awareness. Race distances include: 10 Miler; and 5K (3.1 miles). Please click here for more information.

Colfax Marathon: May 19-21, 2017

Join select AFTD staff and members of the local community as we bring greater FTD awareness to the surrounding Denver area and raise funds to help people affected by FTD. The AFTD-Team will participate in the Colfax Marathon on May 19th – 21st, as an Official Charity Partner. We hope you’ll join us for a morning of friendship and awareness. Race distances include: Marathon (26.2 miles); Half Marathon (13.1 miles); 10 Miler; 5K (3.1 miles); and Relay (26.2 miles 5 legs). Please click here for more information.

AFTD 2017 Conference: 5/5/2017

AFTD’s 2017 AFTD Education Conference will be held on May 5th, 2017 at the Sheraton Inner Harbor Hotel in Baltimore, MD.

Keynote Speaker:

Halima Amjad MD, MPH, is Assistant Professor of Medicine in the Division of Geriatric Medicine at Johns Hopkins University. Her father was diagnosed with primary progressive aphasia when she was graduating from medical school in 2009. She shared her family’s journey and coping strategies in a prize-winning essay “Caring for Dementia: Returning to the Village” written for the John A. Hartford Foundation’s Better Caregiving Better Lives story contest in 2015.

Who Should Attend?

AFTD’s Education Conference provides opportunities for caregivers, persons living with FTD and healthcare professionals to meet in person, share resources and learn about the latest developments in FTD research. The program will offer new opportunities for participation by people living with a diagnosis of FTD, and more breakout session options than ever before.

Register today by accessing this link. Walk-in registration will also be available.

View the 2017 Conference Flyer and Agenda here.