Association for Frontotemporal Degeneration

Howard Glick Guest Speaker at ALFA Conference in May

amaher — Tue, 21 May 2013 12:50:47 +0000

On May 16, 2013, Howard Glick spoke for two hours at the Arizona Assisted Living Federation of America. “A Conversation with Howard” about what it’s like to live with FTD was presented to an audience of more than 250 people to spread awareness about FTD.

AFTD MAC Members Write Editorial for Professional Journal

amaher — Fri, 03 May 2013 18:29:50 +0000

AFTD Medical Advisory Council members Drs. Chiadi Onyike and Edward (Ted) Huey co-wrote an editorial that introduces the April 2013 issue of the International Review of Psychiatry. The piece, entitled “Frontotemporal dementia and psychiatry,” prefaces this issue, which is dedicated to FTD.

Memory Lanes: Bowling to Strike Out Pick’s Disease

amaher — Wed, 24 Apr 2013 19:36:48 +0000

July 21, 2013 – Casey Greemore and Nicholas Krapelin will host a bowling event at Merrimack Ten Pin in Merrimack, NH on July 21 from 11:00 a.m. – 2:00 p.m. to benefit AFTD. Casey’s mom, Lenora, was diagnosed with FTD in 2012. Contact Casey to sign up or for more information at cgreemore25@gmail.com.

NY Man with FTD/ALS Tells His Story to Press

amaher — Wed, 10 Apr 2013 19:24:05 +0000

In September 2012, Tom Ruhlman of Skaneateles, NY spoke with reporter Sean Kirst about his struggle with FTD/ALS. The article also featured insights from Tom’s wife, Lori.

AFTD Speaks to Canadian Press about Ralph Klein’s Passing, FTD

amaher — Fri, 05 Apr 2013 17:04:18 +0000

Members of AFTD’s staff and Medical Advisory Council were interviewed about the passing of former Alberta Premier Ralph Klein and FTD. For the full article, click here.

Edmonton, Canada TV Interviews Man with FTD

amaher — Thu, 04 Apr 2013 17:39:07 +0000

In light of the recent passing of former Alberta Premier Ralph Klein, an Edmonton, Canada TV station interviewed Myron Polis, who is affected with FTD, and his wife Jackie.

Jeff Thredgold of Utah and His Battle with FTD

amaher — Mon, 01 Apr 2013 17:11:46 +0000

The Salt Lake Tribune has written an update on well-known economist Jeff Thredgold. AFTD’s annual conference, to be held in Salt Lake City on April 12, is also mentioned in a side bar to the article.

Former Alberta Premier Ralph Klein is Remembered Across Canada

LizNeal — Mon, 01 Apr 2013 16:02:29 +0000

Ralph Klein, former Premier of Alberta who passed away on March 29th, is remembered in the Canadian newspaper The Globe and Mail. To read about his impressive career as well as his battle with FTD, click here.

AFTD in Washington Post Insert on Rare Diseases

amaher — Mon, 25 Mar 2013 12:44:08 +0000

The Washington Post has run a special eight-page insert on rare diseases in its Monday, March 25th edition of the paper. With the foreward written by a NORD executive, AFTD decided to take part in this special addendum to the newspaper with a short message on the back page. In conjunction with this ad, AFTD has also released the full documentary It Is What It Is on YouTube. The film features the journeys of four families affected by FTD. Click here to view It Is What It Is.

FTD Changes Lives of Erie, PA Couple

amaher — Mon, 18 Mar 2013 16:06:37 +0000

David and Lori Stankiewicz spoke with Gerry Weiss of Erie Times-News about their family’s struggle with FTD. Click here for the full article.