Press Releases

AFTD and ADDF Award Grants Funding FTD Research

The Association for Frontotemporal Degeneration (AFTD) and The Alzheimer’s Drug Discovery Foundation (ADDF) recently announced the recipients of their seventh annual partnership awards program to accelerate drug discovery for frontotemporal degeneration (FTD), a devastating form of dementia characterized by profound changes in behavior, personality, language and movement. Jeffrey Rothstein, M.D., of Johns Hopkins University School of Medicine and Donald Lo, Ph.D., of Duke University Medical Center were each awarded $150,000 to conduct new research focused on developing novel drugs to treat FTD.  For the full press release, click here.

AFTD to Convene Families Affected by Rare Brain Disease

The Association for Frontotemporal Degeneration (AFTD), a national nonprofit based in Philadelphia, will hold its 2014 Education Conference and Annual Meeting at the Crowne Plaza in White Plains on Friday, March 14.  The conference begins at 10 a.m. and concludes at 6 p.m. with a social reception to follow.  Dr. Edward Huey, assistant professor in the departments of psychiatry and neurology at Columbia University, will give an overview of FTD as well as speak about trends and development in the field of FTD research.  Robert Bazell, former NBC Chief Science and Medical Correspondent, will give the keynote address.  Click here for the full release.

Pre-Food for Thought Event Held in PA

Newtown Square, PA — Joyce Shenian, former AFTD board member, opened her home to Newtown Square, PA home to several local people in an effort to create some excitement around AFTD’s upcoming Food for Thought event on October 11 in Radnor.  AFTD Founder Helen-Ann Comstock and Executive Director Susan Dickinson both spoke at the soiree, held August 7th.  Click here for the press release.

BBQ Sauce Gives Life to Disease Research – The Fehons’ Story

Philadelphia, PA─ Bill Fehon is well known in the little borough of Bryn Athyn, PA for two things: teaching high school at the Academy of the New Church for more than 30 years and his original barbeque sauce.  He began making his sauce in the early 1990s; over the years, friends and family would ask for more sauce as soon as they finished up the bottle they received at the holidays.  As the demand for sauce grew, Bill started to think about making a business with his recipe.  But before Bill could realize the dream of selling his sauce, his brain began to deteriorate.

Read the full press release on the Fehons here.

When the “Needle Gets Stuck” – The Lesters’ Story

Raleigh, NC─ In the past six years, Arnette Lester of Raleigh, NC has lost all but a few of her teeth.  She can no longer work or drive a car.  Arnette has difficulty finding the right words and uses the same word to mean many different things; when she can’t come up with any word at all, she’ll substitute the word “something” in its place.  She eats very quickly, barely chewing her food, and her family worries that she will choke.  She wets herself several times a day.  This scenario might not seem so odd for an aging dementia patient.  However, Arnette Lester is just 60 years old.

Read the full press release on the Lesters.