AFTD helped support two important research conferences this November. The 8th Brain Research Conference: RNA Metabolism in Neurological Diseases was organized by Elsevier Publications in San Diego as a prelude to the annual Society for Neuroscience conference. This symposium was chaired by Fen-Biao Gao, University of Massachusetts Medical School and former AFTD Pilot Grant awardee Paul Taylor, St. Jude’s Children’s Research Hospital. Research scientists from 23 countries participated and shared the latest in cutting edge research into RNA biology and how it impacts diseases like FTD, ALS, Alzheimer’s and more. This meeting brought about a truly international exchange of ideas and allowed scientists to share insights across neurological diseases.
AFTD also lent its support to a historic clinical research meeting in San Francisco: Establishing Therapeutic Efficacy in Familial Frontotemporal Degeneration. Adam Boxer of the UCSF Memory and Aging Center was the meeting organizer. Clinicians from 21 countries participated, sharing their data with the goal of building an international network of familial FTD cohorts for clinical trials. Ten short years ago, patients and caregivers could only hope for a diagnosis and the chance to put a name to their illness. Now the FTD research community is discovering commonalities in the underlying biology of brain diseases and meeting to create action plans to forge an international network for future clinical trials. This is a huge step forward, due to an energized, committed network of patients, caregivers, volunteers, donors, clinicians and scientists.
When: November 8, 2013 -
The National Institute of Neurological Disorders and Stroke (NINDS) in collaboration with the Parkinson’s Disease Foundation is sponsoring a Society for Neuroscience satellite workshop on “Mechanisms of Misfolded Protein Propagation in Neurodegenerative Diseases” on November 8th at the Manchester Grand Hyatt in San Diego.
The workshop will focus on the cellular mechanisms used to signal or propagate protein misfolding within the CNS and will explore current technologies that could help advance our understanding of the relevance of these mechanisms to disease progression. Investigators in the fields of neurodegenerative disease biology, synaptic signaling and protein processing are invited to participate in this one-day workshop.
NINDS strongly encourages poster presentations for this workshop. Click here for workshop registration and poster abstract submission.
Registration is limited to 70, so it will be on a first come basis.
For additional details, please see the registration site or contact Dr. Margaret Sutherland at firstname.lastname@example.org.
When: October 22, 2014 to October 25, 2014.
From October 22-25, 2014, the 9th Annual International Conference on FTD will take place in Vancouver, British Columbia. Join FTD clinicians, researchers, trainees and caregivers from around the world as they share knowledge with the goal of improving care for patients and their families. For information about the conference, visit http://www.ftdvancouver2014.com/
When: November 4, 2013 -
Northwestern University’s Cognitive Neurology and Alzheimer’s Disease Center will host its annual conference on FTD and PPA on Monday, Nov. 4 in Chicago. For complete details, visit the conference web page.
When: September 26, 2013 -
September 26 – Free Webinar by Janet Edmundson, M.Ed. – Affirm Yourself for Caregiver Challenges (4th of 5-part series)
For information and to register, click here.