University of Pennsylvania’s FTD Caregiver Conference – May 30, 2014

When: May 30, 2014 - 8:00 am to 5:00 pm.

On Friday, May 30, 2014, the Penn Frontotemporal Degeneration Center will host its annual FTD Caregiver Conference.  The program will feature Dr. Murray Grossman and his colleagues and will run from 8 a.m. to 5 p.m.  The conference flyer gives conference details and a link to registration.

Mayo Clinic Rochester Seminar for FTD and PPA – March 17, 2014

When: March 17, 2014 - 9:00 am to 4:00 pm.

Mayo Clinic Seminar for Families Impacted by Frontotemporal Dementia and Primary Progressive Aphasia 
March 17, 2014 – 9:00 a.m. – 4:00 p.m.

The program takes place at Rochester Mayo Clinic at the Assisi Heights Conference Center. Once registration is received, a confirmation letter including location and directions will be mailed.

Mayo Clinic Rochester, Department of Neurology offers comprehensive educational seminars for patients and their families recently impacted by a diagnosis of Lewy body dementia, frontotemporal dementia, primary progressive aphasia, corticobasal degeneration, progressive supranuclear palsy, and posterior cortical atrophy.

The full day educational program provides families with information helpful in understanding and coping with symptoms unique to their specific disease from experts in the field. Participants are in a supportive setting with other families dealing with a similar diagnosis.

Who should attend?
• Any supportive caregiver, family member or relative who wants to know more is invited to attend.
• Persons diagnosed with the disease are welcome to attend; however, the content is designed for families and care partners. Please take into consideration the length of the day (7 hours) when deciding those best suited to attend.
• As space permits, care professionals may also register.

The program cost includes lunch and refreshments.

Please register or to request a scholarship (limited) by calling 507-284-1324.

9th International Conference on FTD

When: October 23, 2014 to October 25, 2014.

9th International Conference on Frontotemporal Dementias – Oct 23-25, 2014
The Sheraton Vancouver Wall Centre Hotel Vancouver, Canada

To register for the scientific program, click here.

To register for the caregiver program, click here.

• Call for Abstracts and Early Registration to open on March 15th, 2014

Vancouver was recently selected to host the 9th International Conference on Frontotemporal Dementias (ICFTD), which will take place at the Sheraton Vancouver Wall Centre, from October 22 – 25, 2014. Drs. Ian Mackenzie and Howard Feldman will co-organize the meeting with assistance from the University of British Columbia, Division of Continuing Professional Development (UBC CPD). The ICFTD is held every two years and is the only regularly scheduled international conference devoted to FTD, making it an important opportunity for FTD clinicians, researchers, trainees and caregivers from around the world to share knowledge with the goal of improving care for patients with this neurodegenerative disease. This is a particularly exciting time in FTD research as significant recent advances in our understanding of the molecular basis of FTD now provide us with the foundation for the rational development of targeted therapies. It is anticipated that the 2014 conference will attract more than 600 international delegates.

The ICFTD attracts a diverse audience that includes clinicians (neurologists, neuropsychologists, psychiatrists, geriatricians, neuroradiologists), neuroscientists (molecular geneticists, neuropathologists, neurobiologists, pharmacologists) and their trainees, as well as representatives from biomedical and pharmaceutical industries, government agencies, patient advocacy groups, patients, their families, caregivers and interested laypersons.

FTD Conference Rates Start at $159 CDN per night plus taxes.
The Sheraton Vancouver Wall Centre
1088 Burrard Street Vancouver, BC V6Z 2R9


• Check the conference web site:
• Contact: to be added to the e-mail list

AFTD to Convene Families Affected by Rare Brain Disease


The Association for Frontotemporal Degeneration (AFTD), a national nonprofit based in Philadelphia, will hold its 2014 Education Conference and Annual Meeting at the Crowne Plaza in White Plains on Friday, March 14.  The conference begins at 10 a.m. and concludes at 6 p.m. with a social reception to follow.  Dr. Edward Huey, assistant professor in the departments of psychiatry and neurology at Columbia University, will give an overview of FTD as well as speak about trends and development in the field of FTD research.  Robert Bazell, former NBC Chief Science and Medical Correspondent, will give the keynote address.  Click here for the full release.

International Conferences Spotlight FTD


AFTD helped support two important research conferences this November. The 8th Brain Research Conference: RNA Metabolism in Neurological Diseases was organized by Elsevier Publications in San Diego as a prelude to the annual Society for Neuroscience   conference. This symposium was chaired by Fen-Biao Gao, University of Massachusetts Medical School and former AFTD Pilot Grant awardee Paul Taylor, St. Jude’s Children’s Research Hospital. Research scientists from 23 countries participated and shared the latest in cutting edge research into RNA biology and how it impacts diseases like FTD, ALS, Alzheimer’s and more. This meeting brought about a truly international exchange of ideas and SD Conf sign - Dec 13allowed scientists to share insights across neurological diseases.

AFTD also lent its support to a historic clinical research meeting in San Francisco: Establishing Therapeutic Efficacy in Familial Frontotemporal Degeneration. Adam Boxer of the UCSF Memory and Aging Center  was the meeting organizer. Clinicians from 21 countries participated, sharing their data with the goal of building an international network of familial FTD cohorts for clinical trials. Ten short years ago, patients and caregivers could only hope for a diagnosis and the chance to put a name to their illness. Now the FTD research community is discovering commonalities in the underlying biology of brain diseases and meeting to create action plans to forge an international network for future clinical trials. This is a huge step forward, due to an energized, committed network of patients, caregivers, volunteers, donors, clinicians and scientists.