Press Releases

$20 Million David Geffen Fund Gift Announced at AFTD Benefit

At AFTD’s 2017 Hope Rising Benefit in New York City on October 12, AFTD CEO Susan L-J Dickinson announced that the organization had received a major gift in honor of the late Si Newhouse: The David Geffen Foundation has now established the David Geffen Fund at AFTD. Contributions to this Fund will provide a total of $20 million over the next ten years to sustain and deepen AFTD’s work to end FTD. Click here for more information.

FTD’s Economic Burden Is Twice That of Alzheimer’s, Study Shows

The average annual costs associated with FTD is nearly $120,000, nearly twice the costs of Alzheimer’s, according to a study published on the website of the scientific journal Neurology on October 4. The study gathered survey data from more than 670 FTD caregivers; Dr. James E. Galvin of Florida Atlantic University and Dr. David H. Howard of Emory University joined AFTD staff in designing the survey and analyzing the data. The study is the first published in the U.S. to focus solely on the economic burden of FTD. Click here for more information.

Chicago Super Run Participants Walk and Run for FTD Awareness

When Chicago’s Frank Callea was diagnosed with the primary progressive aphasia form of FTD at age 54, the multi-decade Chicago Tribune technology executive vowed to make a difference, even as he stepped away from his professional life. This Saturday, he and his wife, Amy Bouschart-Callea, will join more than 40 friends, family members, fellow AFTD volunteers and AFTD staff at the Chicago Super Run 5K, running to raise FTD awareness. Click here for more information.

Hinchey Family Announces that Former Congressman Maurice D. Hinchey Has Been Diagnosed with FTD

The family of former New York Congressman Maurice D. Hinchey has announced that he has the primary progressive aphasia variant of FTD. Hinchey’s PPA symptoms began as the occasional lost word, but within a relatively short time the disease further affected his eloquent sense of language. Hinchey’s distinguished career in public service spanned 38 years in the U.S. House of Representatives and New York State Assembly. A full press release can be seen here.

Hundreds Impacted by Young-Onset Dementia to Gather in Baltimore for AFTD Conference

AFTD will hold their 2017 education conference in Baltimore, MD at the Sheraton Inner Harbor Hotel, on Friday, May 5. Each year, AFTD hosts an annual conference so that people affected by FTD can meet in person, connect and gain access to important resources and information. FTD caregivers, persons diagnosed, researchers and medical professionals all gather to make this event of significant importance for all affected by FTD. The full press release can be seen here.