A world where frontotemporal degeneration is understood, effectively diagnosed,
treated, cured and ultimately prevented.
In 2009, thanks to a generous gift from an anonymous donor, the Association for Frontotemporal Degeneration engaged in longer-term strategic planning for the first time. Input from key stakeholders in the scientific, medical, and caregiving community was gathered, synthesized and crafted into a plan that will guide AFTD for the next several years.
On November 6, 2009, the AFTD Board re-committed to the full breadth of the organization’s mission and approved the official vision statement above and six strategic priorities. We invite all members of the FTD community to explore the plan, identify the areas about which they are passionate, and engage with AFTD to make our vision a reality. Only by working together to create new resources, build awareness and fund research will we succeed in building a more hopeful future for the families to come.
The following are AFTD’s Strategic Priorities for 2010 to 2013:
Strategic Priority 1: Promote and fund research for diagnosis and the cure. Accelerate progress toward accurate diagnosis and the cure by leveraging strategic partnerships to accomplish the following: establishment of a formal network of FTD centers of excellence, increased participation in brain donation and identification of key biomarkers for FTD.
Strategic Priority 2: Support and enable patients, families and caregivers. Serve as the nexus of an extensive network of support, ensuring accessibility of support groups, information, education and counsel for each family faced with FTD.
Strategic Priority 3: Educate physicians and healthcare providers to better serve FTD patients and families. Develop educational modules in partnership with key professional educational organizations, thereby equipping doctors, nurses and long-term caregivers with the knowledge and capabilities to provide quality care and accurate referrals to FTD patients and their families.
Strategic Priority 4: Create public awareness of FTD and associated realities. Accelerate fulfillment of AFTD’s mission by creating a set of branded materials and disseminating them throughout professional and community networks across the Unites States and Canada, and spreading this message to the public via an annual, branded national awareness event.
Strategic Priority 5: Systematically advocate for care and the cure of FTDs over a broad network of stakeholders. Create and foster the necessary infrastructure, relationships and processes to advocate effectively for a robust system of support for FTD patients and their families.
Strategic Priority 6: Fund AFTD’s growth by securing and expanding a sustainable donor base. Develop a broad and sustainable income stream that will enhance our ability to expand support services for patients and caregivers and accelerate the path to the cure.