Get Involved


“If we are willing to share and to listen we are going to make a difference in the lives of many people. Thanks for my opportunity to assist.  It is my joy and privilege to help others.” Marlene Morgan, founder of Charlotte FTD Caregiver Support Group

It is difficult to face the reality of frontotemporal degeneration without wanting to get involved. AFTD depends on the help of people from all over who want to see research advance, awareness increase, caregivers receive support, and services improve.

No matter what your background is, there are so many ways you can join AFTD to honor a special person and help transform the future.

Register with AFTD

Stay informed about AFTD’s expanding research, advocacy, and support efforts by registering with us. You can sign up to receive our newsletter and tell us how we can serve you better whether you are a patient, caregiver, health professional, or friend.

The AFTD-Team

The AFTD-Team is comprised of every grassroots fundraiser, organizer and participant who steps up to raise awareness and funds for AFTD. Fundraisers may be spread from Connecticut to California, but they are all driven by a common goal of funding research, care, treatment and ultimately a cure.

From hosting golf-outings and 5K runs to email appeals and writing cookbooks, you can make a real difference. Let us help you plan an event today!

Business Donations to AFTD

If you have a business and would like to donate a portion of your sales to the AFTD, we’d be happy to work with you. 


Volunteers are the lifeblood that sustains our mission. Your efforts mean a greater reach for our message and greater resources for research, advocacy, education and improved care.


Individual donations comprise over 95% of AFTD’s income. Your support is critical to our ability to improve the future for those with FTD. Please consider a gift in honor or memory of a loved one.

Purchase a DVD – It Is What It Is

Frontotemporal degeneration robs its victims of the very things that make them unique as human beings- their personality, their emotions, and their ability to communicate. It Is What It Is chronicles four families as they confront FTD. By telling their stories, these families reflect experiences common to many and become harbingers of hope. 


Use the links at the right for more information about these opportunities.