Current Initiatives

National Alzheimer’s Project

On Tuesday, May 15, 2012, the Department of Health and Human Services released a plan to fight Alzheimer’s disease with some specific goals to be reached by 2025.  Included in that plan was the following:

In this plan, the term―Alzheimer’s disease or AD―refers to Alzheimer’s disease and related dementias, consistent with the approach Congress used in NAPA. Related dementias include frontotemporal, Lewy body, mixed, and vascular dementia. It is often difficult to distinguish between Alzheimer’s disease and other dementias in terms of clinical presentation and diagnosis. Some of the basic neurodegenerative processes have common pathways. People with dementia and their families face similar challenges in finding appropriate and necessary medical and supportive care. Unless otherwise noted, in this plan AD refers to these conditions collectively.

This is great news for the FTD community in that they will potentially benefit from this plan as well as Alzheimer’s patients.   To read the full plan, click here.

On July 23rd, AFTD Program Coordinator, Matt Sharp addressed the advisory council for the National Plan to Address Alzheimer’s disease in Washington DC to introduce the council to AFTD and offer our expertise and assistance with The National Alzheimer’s Project Act (NAPA). NAPA is a major federal initiative to help prepare the nation for the oncoming increase of Alzheimer’s and related diseases such as FTD. The project involves 24 federal agencies working with public and private partners to achieve the goal of preventing Alzheimer’s disease by 2025. Click here to see Matt’s address to the council  (starts at 7:35 minutes). For more information on NAPA and the National Plan to Address Alzheimer’s disease, click here.

FTD and State Alzheimer’s and Related Disease Plans

AFTD wants our document “AFTD Guidance for State Alzheimer’s Plans” to inform all 50 U.S. states, but we need your help to get it into the right hands to have the greatest impact. At the first link below are some simple steps to follow to find out more about your state’s plan (or lack thereof) and who to contact to advocate for addressing the needs of people coping with FTD in your State Alzheimer’s and Related Disease Plan. You can also download a copy of the AFTD Guidance for State Alzheimer’s Plans from the second link.

If you are interested in advocating for FTD to be included in your State Alzheimer’s Plan the first step is to contact AFTD’s Program Coordinator, Matt Sharp, at 267-514-7221 or by email at When possible Matt will connect people in the same state to each other to work together. Then use the lists below to determine whether or not your state has an Alzheimer’s plan.

A) The following 30 States (listed by the year plan was released) have an Alzheimer’s and Related Disease plan.

2007 – North Dakota
2008 – Iowa, Kentucky, Michigan, Vermont
2009 – Illinois, Louisiana, New York, Oklahoma, South Carolina, Tennessee
2010 – Colorado, Montana, Texas
2011 – Arkansas, California, Minnesota, Virginia, West Virginia
2012 – Maine, Massachusetts, Oregon, Utah
2013 – Florida, Idaho, Indiana, Maryland, New Mexico, Nevada, Rhode Island

B) The following 13 states (listed alphabetically) & Washington DC are developing a plan:  Alaska, Arizona, Delaware, Hawaii, Mississippi, Nebraska, New Hampshire, New Jersey, North Carolina, Ohio, Pennsylvania, Rhode Island and Wisconsin

C) The following 7 states do not have a state plan and are not actively developing one Connecticut, Georgia, Kansas, Montana, South Dakota, Washington and Wyoming

You can download a copy of simple steps to take to ensure FTD is included in your State Alzheimer’s and related disease plan here

To download a copy of “AFTD Guidance for State Alzheimer’s Plans” click here