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AFTD’s Partners in FTD Care

AFTD's 2017 Hope Rising Benefit: 10/12/2017 in NYC. Tickets, sponsorships and more at this link.


Donald Newhouse, president of Advance Publications, appeared on Charlie Rose on October 23 to talk about his late brother, Si Newhouse, who had primary progressive aphasia. Donald’s wife, Susan, also had PPA; she died in 2015. Click here to watch the segment (fast forward to 25:30 to hear Donald talk about his wife and brother.)
It’s all too rare that we have the opportunity to hear the story of FTD from the perspective of persons diagnosed. That’s why we are so proud to bring you Joe Becker’s powerful new film. VJ & Chuck draws directly on the experiences of people living with FTD, including VJ Anastasia, Teresa Webb (who provides the voiceover), and many others within our community. We hope you’ll share this video widely, to help bring greater awareness of FTD.
The average annual cost of FTD is nearly $120,000 — twice the cost of Alzheimer’s. Read more in the first-ever study published in the U.S. to focus solely on FTD’s economic and social burden. Click here to read the study, co-written by AFTD and published in Neurology. Then download talking points and an infographic to help you share highlights of our findings.